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Managing Personal Information over the Long-term, Or Not? Experiences by Type 1 Diabetes Patients

机译:是否长期管理个人信息? 1型糖尿病患者的体会

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摘要

The management of chronic conditions is often accompaniedrnwith the long-term management of health information. Byrnexamining how patients manage their health information overrntime, we can develop guidelines and design technologies tornsupport this patient work, and also contribute the patients’rnperspective to the existing literature on personal informationrnmanagement. This study explored the long-term personalrninformation management (LTPIM) behaviors of people livingrnwith chronic conditions. We conducted semi-structuredrninterviews and photo-documentation with 23 experienced, typern1 diabetes patients. This mixed methods approach helped usrnidentify five LTPIM styles, including designer, achiever, leader,rncurator and monitor. Those LTPIM styles differ in therninformation tools people used, the intensity of long-termrninformation management behaviors, and their motivators. Thernnuances in those LTPIM styles are unique to the context ofrnchronic conditions, but the categorization of those LTPIM stylesrncan potentially be transferable to LTPIM in non-health contexts.rnOur results support previous literature on the major differencesrnbetween LTPIM and personal information management inrngeneral. Further, we point to issues in current technologies usedrnby patients for LTPIM, indicating a space for improvement.
机译:慢性病的管理通常伴随着健康信息的长期管理。通过检查患者如何超时管理健康信息,我们可以制定准则和设计技术以支持患者的工作,并为患者对现有个人信息管理文献的贡献。本研究探讨了患有慢性疾病的人的长期个人信息管理(LTPIM)行为。我们对23名经验丰富的1型糖尿病患者进行了半结构化访谈和照片记录。这种混合方法可帮助我们识别出五种LTPIM样式,包括设计师,成就者,领导者,策展人和监视器。这些LTPIM样式在人们使用的信息工具,长期信息管理行为的强度以及其动机方面有所不同。这些LTPIM样式的异常情况对于实时情况而言是唯一的,但是在非健康环境中,这些LTPIM样式的分类可能会转移到LTPIM。此外,我们指出了患者用于LTPIM的当前技术存在的问题,这表明有改进的空间。

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