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When people live with multiple chronic diseases:lessons from the use of a social media to promote global collaborative efforts

机译:当人们患有多种慢性疾病时:通过使用社交媒体的经验教训来促进全球合作努力

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While public health and modern medicine contributed to a dramatic increase in life expectancy in the 20th century, the downside of this success has been an epidemic of chronic, incurable diseases, which now account for more than 80% of deaths worldwide. This epidemic has created yet another new phenomenon: a growing number of people are living with multiple chronic diseases at the same time, having to cope with them within out-dated, disconnected and unprepared healthcare delivery systems that continue to focus on acute care of curable diseases, or on single conditions that affect individual organs or systems. On June 1, 2010, as part of Spain's Presidency of the European Union, the Andalusian government launched the first co-created, interactive, living and global book on the main challenges faced by people who live with multiple chronic diseases. The book, which received input from every inhabited continent, was co-created with support from free social resources available through the Global Observatory of Innovative Practices for Complex Chronic Diseases (known in Spanish as OPIMEC and available at www.opimec.org). The book, and the live content available at OPIMEC, summarizes the best available knowledge on this important and seriously neglected area, and proposes innovative strategies to fill the gap between what is known and what should be done to meet the needs and expectations of a growing number of vulnerable people in every society in the world. It also lists key questions that remain unanswered, and that could be tackled by teams of individuals supported by the platform. The knowledge created by this global community is available to anyone with access to the Internet, free of charge, in English and Spanish, and will continue to evolve through the Observatory, where anyone interested in multiple chronic diseases and Internet access could make contributions at any time, from anywhere.
机译:虽然公共卫生和现代医学促成了在20世纪的急剧增加,预期寿命,这一成功的缺点一直慢性病,疑难杂症,现在占死亡人数的80%以上,全球的流行。这种流行病创造了又一个新的现象:越来越多的人患有多种慢性疾病的同时,其内过时,断开和无准备的医疗服务体系是继续专注于急性护理的固化与他们应付疾病,或影响个别器官或系统单一条件。 2010年6月1日,西班牙的欧洲联盟主席的一部分,安达卢西亚政府推出的第一次合作创建的,互动的,客厅和全球图书上所面临的谁多慢性疾病的人生活的主要挑战。这本书,并获得从每一个有人居住的大陆输入,与来自可通过复杂慢性病创新实践的全球观测站(西班牙语称为OPIMEC和提供www.opimec.org)自由的社会资源支持,共同创建。这本书,并在OPIMEC提供的直播内容,总结了这一重要而严重忽视的领域最好的知识,并提出了创新战略,以填补什么是已知的,应该怎样做才能满足不断增加的需求和期望之间的差距在世界上每一个社会弱势群体的数量。它还列出了仍未解决的关键问题,并可以通过平台支持个人的团队来解决。通过全球社区创建的知识提供给任何人能够访问互联网,免费的,在英语和西班牙语,并将继续通过天文台,那里有兴趣的人多的慢性疾病和互联网接入可以使在任何贡献演变时间,从任何地方。

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