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Managing Personal Health Information in the Home: Strategies of Diabetes Patients in the US and China

机译：管理家庭的个人健康信息：美国和中国糖尿病患者的策略

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People around the world have developed many strategies to thrive with diabetes by harnessing health information about themselves and the health condition in general. This study examines the information management strategies (i.e., what people do with the information they gathered) employed by diabetes patients and how these strategies help them reach their health outcome goals. We conducted semi-structured one-on-one interviews and photo-documentation with 52 people living with type 1 or type 2 diabetes in the US and in China. These participants introduced us to a wide variety of information management strategies that take advantage of space, people and technology. Many of these strategies involve intricate data mining, information visualization, space and technology connectivity management, artwork, and other skills and techniques that are not well supported by existing tools, services and the social contexts. Our findings suggest that the personal information management activities observed in previous studies are not independent of one another. Strategies, or a personalized collection of information management activities and information items, can be just as important as their individual parts. Also, US participants reported performing different strategies at different frequencies compared to their Chinese counterparts, supporting that social contexts can influence how people manage their information. These findings can point to important directions of future developments in technology and health care services, as well as their application in various social contexts.
机译：通过利用有关自己和健康状况的健康信息，世界各地世界各地的策略与糖尿病一起茁壮成长。本研究介绍了糖尿病患者雇用的信息管理策略（即人们对他们所聚集的信息，这些策略如何帮助他们达到健康结果目标。我们进行了半结构化一对一的一次访谈和照片文件，其中52人含有1型或2型糖尿病在美国和中国。这些参与者向我们介绍了各种信息管理策略，这些策略利用空间，人员和技术。其中许多策略涉及错综复杂的数据挖掘，信息可视化，空间和技术连接管理，艺术品和其他不受欢迎的技能和技术，这些技能和技术不受欢迎，这些技能和技术不受限制地支持，这些技能和技术不受欢迎，这些技能和技术不受欢迎，服务和社会背景。我们的研究结果表明，在以前的研究中观察到的个人信息管理活动并不彼此独立。战略或个性化信息管理活动和信息项目，可以与个别零件一样重要。此外，与中国同行相比，美国参与者报告以不同频率进行不同的策略，支持社会背景可以影响人们如何管理其信息。这些调查结果可以指向技术和医疗保健服务的未来发展的重要方向，以及在各种社会环境中的应用。

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