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Virtual networks for cancer patients of the 21st century: Patient empowerment, psychological well-being and trauma transcendence.

机译:面向21世纪癌症患者的虚拟网络:患者授权,心理健康和超越创伤。

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With the advent of the Internet technology, a significant amount of communication is taking place among patients themselves. This research conceptualized cancer patients who were participating in online cancer support groups as proactive health care consumers in order to elicit informational and emotional support from other patients. Among the specific aims of the study were (a) exploration of the extent to which participation in internet based cancer support groups contributed to patient knowledge about illness, (b) the impact of online cancer support groups have on patients' health care choices and decisions (c) the extent to which online cancer groups affected patients' appraisal of their illness experience and (d) contributed to their psychological well being and to 'trauma transcendence' outcomes.;In order to test the proposed research model, a cross-sectional study of cancer patients was conducted. An online survey questionnaire was designed to collect self-report data. A sample of 350 cancer patients participated in the research. Data analysis using bivariate and multiple regression analyses allowed for testing stress based conceptual model anchored in proactive health care consumerism model of Kahanas' (2003). Path analysis of the conceptual model was conducted to reveal the explanatory power of each block of variables. Explanatory powers of the tested models (adjusted R squares) ranged from .30 for patient knowledge, .33 for patient participation in health care, .39 for patient psychological well-being and .45 for trauma transcendence for the outcome variables of the conceptual model.;Results of the analyses suggested that online cancer support groups contributed positively to coping resources of patients. Results indicated that we may be witnessing the emergence of proactive patients who use internet based support groups in order to better cope with illness stressors and 'empower' themselves as health care consumers. Results also suggested participation in online cancer groups influenced the appraisal of the illness experience and contributed positively to patient psychological well-being and trauma transcendence outcomes.
机译:随着互联网技术的出现,患者之间正在进行大量的通信。这项研究将参加在线癌症支持小组的癌症患者概念化为积极的医疗保健消费者,以寻求其他患者的信息和情感支持。该研究的具体目标包括(a)探索基于互联网的癌症支持小组参与程度在多大程度上有助于患者了解疾病知识;(b)在线癌症支持小组对患者医疗保健选择和决策的影响(c)在线癌症群体在多大程度上影响了患者对他们的疾病经历的评估,并且(d)促进了他们的心理健康和“创伤超越”结果。;为了检验所提出的研究模型,请采用横断面对癌症患者进行了研究。设计了一个在线调查问卷以收集自我报告数据。 350名癌症患者的样本参加了该研究。使用双变量和多元回归分析进行的数据分析允许测试基于压力的概念模型,该模型锚定于Kahanas(2003)的主动卫生保健消费主义模型中。进行了概念模型的路径分析,以揭示每个变量块的解释能力。测试模型的解释能力(调整后的R平方)范围为.30的患者知识,.33的患者参与医疗保健,.39的患者心理健康和.45的超越精神对于概念模型的结果变量分析结果表明,在线癌症支持小组为应对患者资源做出了积极贡献。结果表明,我们可能正在目睹使用基于互联网的支持小组以更好地应对疾病压力源并“授权”自己作为医疗保健消费者的积极患者的出现。结果还表明,参与在线癌症组影响了对疾病经历的评估,并为患者的心理健康和创伤超越成果做出了积极贡献。

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