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Balancing and negotiating the home as a place of caring: The experiences of families caring for children with long-term care needs.

机译：平衡和协商作为照料场所的房屋：家庭照料需要长期照料的孩子的经历。

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摘要

This thesis examines the meanings and experiences of the home as a place of caring for families with children who have long-term care needs living in Ontario, Canada. The home as a place of caring intersects government policy, the publicly funded home support service environment and individual and family experience. Families caring for children with long-term care needs at home experience profound changes in the spatial and social organization and atmosphere of their homes.;My research contributes to a critical understanding of the challenges, negotiations and tensions that arise everyday as homes as places are shaped by and shape long-term care tasks and routines. The findings highlight many issues that come to the forefront when homes become places of caring including: (1) difficulties in modifying the home to accommodate a child's changing body and care needs; (2) the reconstruction of spaces in the home as families ensure that the child is included in all aspects of family life; (3) struggling with a lack of privacy; and (4) the reality of family members being homebound. Ultimately, this research challenges the way that the home as a place has been theorized in geography and housing studies. Valuable contributions are made to the literature in social and health geography, the health and social sciences literature regarding home and community care, and the public policy discourse that impacts the daily lives of children with long-term care needs and their families.;Semi-structured interviews in one urban and one rural study area were conducted with the person most knowledgeable with the child's care needs. Grounded theory guided the analysis as the families' experiences and meanings regarding the home as a place of caring were uncovered, compared, refined, and specified. The findings emphasize that the home as a place of caring is dynamic, actively experienced, and that families struggle with balancing responsibilities and activities related to care, home and family. The families' diverse experiences are the result of complex intersections among child, family, home and service contexts.
机译：本文研究了家庭的意义和经历，该家庭是在加拿大安大略省照顾有长期护理需要的儿童的家庭的地方。作为照料场所的家庭与政府政策，公共资助的家庭支持服务环境以及个人和家庭经验相交。照顾有长期护理需要的孩子的家庭，他们的住房的空间和社会组织以及氛围都会发生深刻的变化。；我的研究有助于人们深刻理解作为家的地方所面临的挑战，谈判和紧张局势制定并制定长期护理任务和程序。研究结果突出了许多问题，当家庭成为照料场所时，这些问题就成为最重要的问题，其中包括：（1）难以适应儿童的身体变化和照料需求而对住房进行改造； （2）重建家庭空间，以确保孩子被纳入家庭生活的各个方面； （3）缺乏隐私而挣扎； （4）家庭成员无所不在的现实。最终，这项研究挑战了在地理和住房研究中将住宅作为场所的理论。对社会和健康地理学方面的文献，有关家庭和社区护理的健康和社会科学文献以及影响有长期护理需要的儿童及其家庭的日常生活的公共政策论述做出了宝贵的贡献。在一个城市和一个农村研究区进行了结构化访谈，对最了解孩子的照料需求的人进行了采访。扎根的理论指导了这一分析，因为人们发现，比较，完善和说明了家庭作为照料之地的经历和含义。研究结果强调，家庭是一个充满爱心的地方，充满活力，经验丰富，家庭在平衡与护理，家庭和家庭有关的责任和活动方面处于挣扎状态。家庭的不同经历是儿童，家庭，家庭和服务环境之间复杂交汇的结果。

著录项

  • 作者

    Yantzi, Nicole Marie.;

  • 作者单位

    Queen's University (Canada).;

  • 授予单位 Queen's University (Canada).;
  • 学科 Geography.;Sociology Individual and Family Studies.;Social Work.
  • 学位 Ph.D.
  • 年度 2005
  • 页码 254 p.
  • 总页数 254
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

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