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Needs of familial caregivers of cancer patients across the advanced cancer disease trajectory.

机译：跨越晚期癌症疾病轨迹的癌症患者的家庭照顾者的需求。

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摘要

Familial caregivers are providing increasing amounts of care to advanced cancer patients. Increased understanding of caregivers' needs is vital in providing necessary support to lessen caregiver burden and comorbidity. This study examines particular information needs across a variety of specific events in the advanced cancer disease trajectory. A cross-sectional sample of 107 familial caregivers (24 current and 83 bereaved) of people with advanced cancer completed a needs assessment survey along with a measure of health information-seeking behavior. Analyses extend current research by including more specific disease-related events along the advanced cancer trajectory through bereavement. In all information categories, endorsement of wanted information differed across broad stages of Cancer Progression, Treatment, End of Life, and Post-Patient Death. For all information categories, except Dying and Spirituality, greatest information was wanted at the Cancer Progression stage. Information need also differed across specific events within broad stages. The categories of Disease/Medical and Relating to the Patient were the most endorsed at events involving patient care. Spirituality was least endorsed. At patient death, Caregiver Well-being has the highest endorsement. For events thereafter, information on Caregiver Well-being, Spirituality, Future Outlook, and Family and Close Others was most endorsed. Information needs did not differ based on age or education. Whether or not a caregiver had experienced a given event on the cancer trajectory impacted some categories of information desired at the events of leaving the hospital for home, going into hospice, patient death, immediately after death, and bereavement. In all cases, those who had experienced the event wanted more information. In comparing current to bereaved caregivers, no differences in information endorsement occurred for events of the Cancer progression or Treatment stages. This study also involved the validation and factor analysis the Health Information-Seeking Behavior Survey. Two factors, Health Information-Seeking and Health Information-Avoiding, emerged. Health Information-Seeking correlates positively with some of the information categories at some of the stages. Increased understanding of caregiver needs at specific key events in the advanced cancer illness trajectory can now be used to inform the development of effective familial caregiver education interventions.
机译：家族护理人员正在为晚期癌症患者提供越来越多的护理。对照护者需求的加深了解对于减轻照护者的负担和合并症提供必要的支持至关重要。这项研究考察了晚期癌症疾病轨迹中各种特定事件的特定信息需求。对107名患有晚期癌症的家族护理人员（目前为24名，失去了83名）的横断面样本进行了需求评估调查，并评估了健康信息寻求行为。分析扩大了当前的研究范围，包括通过丧亲丧气沿着晚期癌症轨迹纳入了更多与疾病相关的特定事件。在所有信息类别中，对有用信息的认可在癌症进展，治疗，生命终止和患者死亡后的广泛阶段中都不同。对于所有信息类别，除了“死亡”和“灵性”，在癌症进展阶段都需要最大的信息。在广泛阶段的特定事件中，信息需求也有所不同。在涉及患者护理的事件中，最受疾病/医疗和与患者有关的类别。灵性是最不被认可的。在患者死亡时，“照顾者幸福”得到了最高的认可。对于此后的事件，最赞同有关照料者的幸福感，灵性，未来前景以及家庭和亲密他人的信息。信息需求不会因年龄或受教育程度而异。护理人员是否经历过特定的癌症轨迹事件，影响了某些信息的种类，这些信息在离开医院回家，进入临终关怀，病人死亡，死亡后和丧亲事件中是需要的。在所有情况下，经历过此事件的人都需要更多信息。在比较目前与失去亲人的照顾者时，对于癌症进展或治疗阶段的事件，信息认可方面没有差异。这项研究还涉及“健康信息搜寻行为调查”的验证和因素分析。出现了两个因素，即寻求健康信息和避免使用健康信息。在某些阶段，“寻求健康信息”与某些信息类别呈正相关。现在，可以利用对晚期癌症疾病轨迹中特定关键事件的照护者需求的加深了解，来指导有效的家庭照护者教育干预措施的发展。

著录项

  • 作者

    Bernard, Lori Lynn.;

  • 作者单位

    University of North Texas.;

  • 授予单位 University of North Texas.;
  • 学科 Psychology Clinical.;Health Sciences Oncology.;Education Health.
  • 学位 Ph.D.
  • 年度 2004
  • 页码 131 p.
  • 总页数 131
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

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