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Actualizing Empowerment: Developing a Framework for Partnering with Families in System Level Service Planning and Delivery.

机译:实现授权:在系统级服务规划和交付中开发与家庭合作的框架。

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摘要

The engagement of families of children and adolescents with Serious Emotional Disturbance (SED) as full partners in individual treatment, organizational, and system level decision making has become an important focus for systems of care (SOCs) serving youth with emotional and behavioral challenges. SOCs typically include cross-agency partnerships with mental health, child welfare, juvenile justice, and education for the purpose of providing services and supports for youth with SED who have multi-agency needs. Implementation of a federal mandate requiring family driven care (FDC) within systems of care funded through the Children's Mental Health Initiative (CMHI) has revealed that most system of care leaders recognize the value of families as full partners in decision making at all levels of the system, strive to have meaningful family involvement, but are challenged by how to successfully engage families in this process.;The purpose of this research study was to explicate more fully the roles of families by examining the structures, processes, and relationships characteristic of family involvement in system level service planning and delivery decisions within established system of care communities and to develop a framework that depicts how SOCs engage families in system level decision making. A qualitative secondary analysis (QSA) was conducted, using data collected through Case Studies of System Implementation, a five-year research study that used a multi-site embedded case study design to examine system of care development. Six well-functioning SOCs throughout the country participated in the original study. Team-based data collection from these sites included 307 system documents (e.g., state- and local-level reports; evaluation, grant and budget information; organizational charts), direct observations (41), and semi-structured interviews with key stakeholders (209), as well as stakeholder completion of 113 ratings exercises related to factors critical to system development and implementation. Interviews were conducted with policy makers, administrators, judges, service managers, direct care staff, families, and youth (>18) across all partner agencies within the SOC. Findings from the original study revealed not only information on system development but an emerging theme of the important role of families in planning and implementing the SOC.;A team-based QSA was conducted to more thoroughly examine how families are engaged in system level decision making. Findings reveal the necessity of an engaged, locally developed, autonomous family organization that is regarded as an equal system partner, and at least one system of care leader who promotes FDC. Also present are collaborative activities such as training and coaching, evaluation, and grant writing; and family organization activities such as capacity building of families and strategic outreach to system partners. The SOCs also demonstrate specific relationship-building activities and exhibit a shared value of FDC throughout the system. A framework was developed to depict implementation of FDC based on study findings. The framework was then modified based on data collected during focus groups conducted with Lead Family Contacts, Principal Investigators, and Project Directors from system of care communities currently funded through the CMHI. Research results yield specific structures, processes, relationships, and a foundational shared value for FDC that are present in systems of care that engage families as partners in system level decision making.
机译:患有严重情感障碍(SED)的儿童和青少年家庭作为个人治疗,组织和系统级决策的全面合作伙伴,已成为照顾有情感和行为挑战的青年的护理系统(SOC)的重要重点。 SOC通常包括与精神健康,儿童福利,少年司法和教育的跨机构合作伙伴关系,目的是为具有跨机构需求的SED青年提供服务和支持。在由儿童心理健康计划(CMHI)资助的医疗体系中,一项要求家庭驱动医疗(FDC)的联邦命令的执行表明,大多数医疗体系负责人都认识到,家庭作为全力合作伙伴在各级决策中的价值。系统,努力使家庭有意义地参与其中,但是在如何成功地使家庭参与此过程中受到挑战。;本研究的目的是通过研究家庭的结构,过程和关系特征来更充分地说明家庭的作用参与已建立的护理社区系统内的系统级服务计划和交付决策,并开发一个框架,描述SOC如何让家庭参与系统级决策。使用通过系统实施案例研究收集的数据进行了定性二次分析(QSA),这是一项为期五年的研究,使用多站点嵌入式案例研究设计来检查护理开发系统。全国有六个运作良好的SOC参与了原始研究。从这些站点进行的基于团队的数据收集包括307个系统文档(例如,州和地方级别的报告;评估,拨款和预算信息;组织结构图),直接观察(41)和与主要利益相关者的半结构化访谈(209) ),以及利益相关者完成了与系统开发和实施的关键因素相关的113项评分练习。与SOC内部所有合作伙伴机构的决策者,管理人员,法官,服务经理,直接护理人员,家庭和年轻人(> 18岁)进行了访谈。原始研究的结果不仅揭示了有关系统开发的信息,而且还揭示了家庭在计划和实施SOC中的重要作用的新兴主题。;基于团队的QSA进行了更彻底的研究,以探讨家庭如何参与系统级决策。调查结果表明,有必要建立一个参与的,本地发展的,自治的家庭组织,该组织被视为平等的制度伙伴,并且至少有一个促进FDC的护理负责人制度。还提供协作活动,例如培训和指导,评估和赠款撰写;以及家庭组织活动,例如家庭能力建设和对系统合作伙伴的战略推广。 SOC还展示了特定的建立关系活动,并在整个系统中展现了FDC的共享价值。根据研究结果,开发了一个框架来描述FDC的实施。然后根据与主要家庭联系人,主要研究人员和项目负责人从当前通过CMHI资助的护理社区系统进行的焦点小组收集的数据对框架进行了修改。研究结果为FDC提供了特定的结构,过程,关系和基本的共享价值,这些价值存在于护理系统中,使家庭成为合作伙伴参与系统级决策。

著录项

  • 作者

    Ferreira, Kathleen.;

  • 作者单位

    University of South Florida.;

  • 授予单位 University of South Florida.;
  • 学科 Health Sciences Mental Health.;Sociology Public and Social Welfare.;Sociology Individual and Family Studies.
  • 学位 Ph.D.
  • 年度 2011
  • 页码 213 p.
  • 总页数 213
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

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