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首页> 外文学位 >Exploration of Patient Record Ownership and Accessibility across the Globe: Who Owns Patient Data? Importance of Patient Data in Regards to Patient Care
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Exploration of Patient Record Ownership and Accessibility across the Globe: Who Owns Patient Data? Importance of Patient Data in Regards to Patient Care

机译：探索全球患者记录的所有权和可访问性：谁拥有患者数据？关于患者护理的患者数据的重要性

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摘要

Objectives: The objective of the study is to determine who has ownership of accessibility rights to patient data in an electronic health record within five countries selected. Once this was determined, one could ascertain the importance of access rights of patient data in regards to patient care.;Methods: For this retrospective study, five countries were selected from all across the world with different healthcare systems, governing structures, and various views regarding the Electronic Health Record system. The countries were chosen to get a diverse coverage about patient data ownership and accessibility from around the world. A thorough literature research was conducted to find the following: 1) who rightfully owns patient data accessibility in the countries selected for the research study and 2) the importance of patient data accessibility when it relates to patient care.;Analysis/Discussion: One of the most important observations made was that the electronic medical record system was not implemented in the selected countries at the same time, and consequently it makes it quite difficult to compare ownership rights of accessing patient data in the context of digital patient records. The research determined that in the United States, Canada, United Kingdom, and Malaysia the patients were able to rightfully own their data. Saudi Arabia was the only country among the five nations researched which stated that those who create the patient data (e.g. healthcare providers) have full ownership to the access of the medical record and the information within it. The quantity and quality of the literature on ownership rights to access patient data did not match the author's expectations, given the importance of who legally has the rights when it comes to accessing patient data.;Conclusions: Based on the retrospective study, it indicates that the general public has very strong privacy concerns regarding how their patient health information must be handled, and the concerns regarding who may have access to their health information outside the patient care setting. This research reveals that current laws and legal practices don't have the sufficient privacy protection for patients when it comes to their health records. As one article had stated "balancing patient privacy protections with advancing data-driven clinical research and care delivery is an ongoing challenge for many healthcare organizations." [56].
机译：目标：该研究的目的是确定在选定的五个国家/地区中谁拥有对电子病历中患者数据的可访问性的所有权。一旦确定了这一点，就可以确定患者数据在患者护理方面的访问权的重要性。方法：对于这项回顾性研究，从世界各地选择了五个国家，它们具有不同的医疗保健系统，治理结构和不同观点关于电子病历系统。选择这些国家是为了获得来自世界各地的患者数据所有权和可访问性的多元化报道。进行了详尽的文献研究，发现以下内容：1）在选择进行研究的国家/地区正确拥有患者数据可访问性； 2）与患者护理有关的患者数据可访问性的重要性。；分析/讨论：最重要的观察结果是，所选国家/地区并未同时使用电子病历系统，因此，在数字病历中很难比较访问病历数据的所有权。研究确定，在美国，加拿大，英国和马来西亚，患者能够正确拥有自己的数据。沙特阿拉伯是被研究的五个国家中唯一指出表示创建患者数据的人（例如医疗保健提供者）对访问医疗记录及其中的信息拥有完全所有权的国家。鉴于在访问患者数据时合法拥有权利的重要性，有关访问患者数据的所有权的文献的数量和质量与作者的预期不符。结论：基于回顾性研究，它表明公众对于如何处理其患者健康信息以及哪些人可以在患者护理环境之外访问其健康信息的隐私权非常关注。这项研究表明，就患者的健康记录而言，当前的法律和法律惯例并未为患者提供足够的隐私保护。正如一篇文章所说的那样，“通过许多数据驱动的临床研究和医疗服务来平衡患者的隐私保护是许多医疗机构面临的持续挑战。” [56]。

著录项

  • 作者

    Vasanthakumaran, Sinthuja.;

  • 作者单位

    University of California, Davis.;

  • 授予单位 University of California, Davis.;
  • 学科 Health sciences.
  • 学位 M.S.
  • 年度 2016
  • 页码 67 p.
  • 总页数 67
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

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