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An Exploratory Survey of Factors Affecting Satisfaction with Educational Experiences for Parents of Children with Cystic Fibrosis

机译：影响囊性纤维化患儿父母对教育经验的影响因素的探索性调查

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作者
Keenan, Rebecca Perry.;
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作者单位

Duquesne University.;

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授予单位 Duquesne University.;
学科
学位 Ph.D.
年度 2018
页码 102 p.
总页数 102
原文格式 PDF
正文语种 eng
中图分类 AAI10979321;
关键词
Cystic fibrosis; Home-school partnership; Satisfaction;

机译：囊性纤维化;家庭学校合作;满意;

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专利

1. ROUTINE SCREENING FOR DEPRESSION IN PARENTS OF CHILDREN WITH CYSTIC FIBROSIS: PARENT PERCEPTIONS AND SATISFACTION [J] . Roach C. M., Smith B. A., Cogswell A. Pediatric Pulmonology . 2016,第Suppla45期

机译：患有囊性纤维化患儿父母的抑郁症的常规筛查：父母看法和满意度
2. The views and experiences of parents of children with autistic spectrum disorder about educational provision: comparisons with parents of children with other disabilities from an online survey [J] . Sarah Parsons, Ann Lewis, Jean Ellins European Journal of Special Needs Education . 2009,第1期

机译：自闭症儿童父母对教育提供的看法和经验：通过在线调查与其他残疾儿童父母的比较
3. LISTENING TO PARENTS: HOW PARENTS' EXPERIENCES CHANGED NEBULISER TRIALS FOR PRESCHOOL CHILDREN WITH CYSTIC FIBROSIS [J] . Murray N., Collins N., Dixon E., Pediatric Pulmonology . 2014,第Suppla38期

机译：对父母的倾听：患有囊性纤维化的学龄前儿童的父母体验如何改变中性子试验
4. BREATH ANALYSIS WITH SECONDARY IONIZATION HIGH-RESOLUTION MASS SPECTROMETRY (SESI-HRMS) IN THE CLINICAL ENVIRONMENT WITH A FOCUS ON DISEASE SPECIFIC BIOMARKERS IN CHILDREN WITH CYSTIC FIBROSIS [C] . Tobias Bruderer, Naemi Haas-Baumann, Ronja Weber, International Mass Spectrometry Conference . 2018

机译：临床环境中二次电离高分辨率质谱（SESI-HRMS）对患有囊性纤维化的儿童疾病特异性生物标志物的呼吸分析
5. The relationship of parental overprotection and parenting stress to psychological distress in parents of children with asthma and cystic fibrosis: A cross-illness comparison. [D] . Espinoza, Leafar Francesco-Jose. 2005

机译：哮喘和囊性纤维化患儿父母的父母过度保护和父母压力与心理困扰的关系：交叉疾病比较。
6. Factors that Influence Parents’ Experience with Results Disclosure after Newborn Screening Identifies Genetic Carrier Status for Cystic Fibrosis or Sickle Cell Hemoglobinopathy [O] . Jenelle L. Collins, Alison La Pean, Faith O’Tool, -1

机译：新生儿筛查后影响父母对结果披露的影响的因素鉴定了囊性纤维化或镰状细胞血管病病的遗传载体状态
7. 399 A descriptive survey designed to assess parents satisfaction with the Cystic Fibrosis annual review process at the Sheffield Children's NHS Trust [O] . Bott S., Lacey A., Elliott T., 2006

机译：399一项描述性调查，旨在评估父母对谢菲尔德儿童NHS基金会对囊性纤维化年度检查程序的满意度
8. Hormona del Crecimiento Humano para los Ninos con Fibrosis Quistica: Revision de la Investigacion para Padres y Personas que Ayudan al Cuidado (Human Growth Hormones for Children with Cystic Fibrosis: A Review of the Research for Parents and Caregivers). [R] . 2011

机译：Hormona del Cracimiento Humano para los Ninos con Fibrosis Quistica：Revision de la Investigacion para padres y personas que ayudan al Cuidado（人类生长激素用于囊性纤维化患儿：回顾父母和看护人的研究）。

An Exploratory Survey of Factors Affecting Satisfaction with Educational Experiences for Parents of Children with Cystic Fibrosis

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