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Family quality of life in the context of aging and intellectual disability.

机译：在老龄化和智力残疾背景下的家庭生活质量。

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摘要

Families are an important source of support for persons with an intellectual disability who, as a group, are experiencing increased longevity due to better health and social care as are their family caregivers. Little Canadian research exists, however, to guide policy and service provision for these families. Nonetheless, a shift in social policy and service delivery as well as demographic changes has elevated the importance of family caregiving in many countries.The study is rich in detail and illustrates important aspects of family quality of life as perceived by participants. Family quality of life was described in terms of relationships and in reference to events that were perceived to have had an impact on those relationships. Issues raised encompass variability in family relations and experiences the enduring nature of these relationships the blend of positive perceptions alongside family challenges and factors that seem to influence relations between families and services. The interactive nature of the family, individual and social environment comes through in the perceptions held by participants and in what seems to maintain, enhance or challenge family quality of life. The positive attributes revealed in the study contribute to the information and question base families and service providers should know about as they work towards maintaining and enhancing quality of life. This may help support both the adult with the intellectual disability as well as other aging family members. The study's methodology has advantages and limitations that are discussed yet offers direction for further study. Recommendations for future research and policy and practice are made based on findings.The purpose of this study was to explore family quality of life from the perspective of older-aged parents, siblings, and adults with an intellectual disability. The study took a mixed methods approach with a qualitative theoretical orientation to maximize data collection in a relatively new field of study. All participants were involved in an interview or focus group, and parents and siblings were also asked to complete a survey questionnaire. Participants reflected on family life in retrospect, made comments on the present, and gave a preview of the future from their perspective.
机译：家庭是为智障人士提供支持的重要来源，这些智障人士由于其家人和照料者的更好的健康和社会关怀而正经历着更长的寿命。但是，加拿大很少有研究来指导这些家庭的政策和服务提供。然而，在许多国家，社会政策和服务提供的转变以及人口结构的变化提高了家庭照料的重要性。这项研究内容详尽，并阐明了参与者所感知的家庭生活质量的重要方面。家庭的生活质量是通过关系和被认为对这些关系有影响的事件来描述的。提出的问题包括家庭关系的可变性，并经历了这些关系的持久性，包括积极观念，家庭挑战以及似乎影响家庭与服务之间关系的因素。家庭，个人和社会环境的互动性来自参与者的看法，以及维持，改善或挑战家庭生活质量的因素。研究中揭示的积极属性有助于信息和问题库家庭以及服务提供者在努力维持和提高生活质量时应了解的知识。这可能有助于支持智障成年人以及其他年老家庭成员。该研究的方法论具有优点和局限性，已进行了讨论，但仍为进一步研究提供了方向。在发现的基础上对未来的研究，政策和实践提出了建议。本研究的目的是从年龄较大的父母，兄弟姐妹和智障成年人的角度探讨家庭生活质量。该研究采用定性理论取向的混合方法，以在相对较新的研究领域中最大化数据收集。所有参与者都参与了访谈或焦点小组，还要求父母和兄弟姐妹填写调查问卷。与会者回顾了家庭生活，对当下进行了评论，并从他们的角度对未来进行了展望。

著录项

  • 作者

    Jokinen, Nancy Sandra Marie.;

  • 作者单位

    University of Calgary (Canada).;

  • 授予单位 University of Calgary (Canada).;
  • 学科 Gerontology.Sociology Individual and Family Studies.Social Work.
  • 学位 Ph.D.
  • 年度 2008
  • 页码 340 p.
  • 总页数 340
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

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