Objective To explore the family economic and mental burdens caused by children with trisomy - 21 syndrome in jining City. Methods From january to August 2013,a questionnaire survey in 78 children with trisomy - 21 and 170 their carers( study group)were carried out,100 health children of similar age and 190 their carers( control group)in jining. Life Satisfaction Rating( LSR)scale and Life Satisfaction Index A( LSIA)were used to evaluate the subjectsˊ life satisfaction,Symptom Checklist(SCL - 90)to assess the familiesˊ burdens. Results In rural and urban areas,the pediatric patientsˊ treatment costs accounted for 68. 56% ,55. 91% of the familiesˊ incomes in study group. The LSR,LSIA scores were lower in study group than in control group(P < 0. 05);LSIA score was lower in subjects of rural areas than in urban areas in study group,the difference was significant(P < 0. 05). There was difference in scores of somatization,interpersonal relation, depression,anxiety and psychotism in SCL - 90 between 2 groups(P < 0. 05). The scores of interpersonal relation in SCL - 90 were higher in subjects of rural areas than in those of urban areas in study group( P < 0. 05). Conclusion Trisomy - 21 syndrome children may not only bring economic burdens to their families but also affect their carersˊ QOL and mental health, which should be paid enough attention to.%目的：调查济宁地区21-三体综合征患儿致家庭经济负担及精神负担情况。方法2013年1—8月对济宁市78例21-三体综合征患儿的170名陪护人（试验组）及同期济宁市年龄与患儿相仿的、近期无任何重大疾病的100例健康儿童的190名陪护人（对照组）进行问卷调查。采用生活满意度评定量表（LSR）及生活满意度指数 A （LSIA）评定两组陪护人生活满意度，采用症状自评量表（SCL -90）评定两组家庭负担情况。结果试验组农村地区和城镇地区患儿治疗支出占家庭收入的68.56％、55.91％。试验组陪护人 LSR、LSIA 评分均低于对照组（P ＜0.05）；试验组农村地区陪护人 LSIA 评分低于城镇地区，差异有统计学意义（ P ＜0.05）；试验组陪护人 SCL -90中躯体化、人际关系、抑郁、焦虑及精神病性5个因子评分均低于对照组，差异均有统计学意义（P ＜0.05）；试验组农村地区陪护人 SCL -90中仅人际关系因子评分高于城镇地区，差异有统计学意义（P ＜0.05）。结论21-三体综合征患儿不仅会给家庭带来经济负担，更影响陪护人的生活质量及精神健康状况，应该引起足够的重视。
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