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Parents’ Experiences With Ultrasound During Pregnancy With a Lethal Fetal Diagnosis

机译:父母在怀孕期间进行超声检查并进行致命胎儿诊断的经验

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摘要

This longitudinal naturalistic study sought to describe parent experiences of ultrasounds during pregnancies with lethal fetal diagnoses (LFDs). We interviewed 16 mothers and 14 partners twice during pregnancy and twice after birth and death of their infant. Parents reported that ultrasound providers had a profound impact on their experiences with LFDs. Within three stages of pregnancy (pre-diagnosis, learning the diagnosis, and living with the diagnosis), themes of optimistic expectation, hearing bad news, need to know, and time with baby emerged. The dynamics of interactions with ultrasound providers included differing goals and expectations, and compatibility of interactions. These interactions were either satisfying or added to parents’ burden. Ultrasound providers have the opportunity to share valuable knowledge and facilitate understanding and precious time with the baby. Providers of obstetrical care can improve communication with parents with LFDs at critical time periods by matching their interaction to parents’ needs.
机译:这项纵向的自然主义研究试图描述孕妇在进行致命胎儿诊断(LFD)时的超声检查经验。我们在怀孕期间,婴儿出生后和死亡之后两次采访了16位母亲和14位伴侣。父母报告说,超声提供者对他们使用LFD的经历产生了深远的影响。在怀孕的三个阶段(预诊断,学习诊断和接受诊断后),出现了乐观期望,听到坏消息,需要了解和与宝宝在一起的时间的主题。与超声提供者的互动动态包括不同的目标和期望,以及互动的兼容性。这些互动既令人满意,又增加了父母的负担。超声提供者有机会与婴儿分享宝贵的知识,促进理解和宝贵的时间。产科护理提供者可以通过使他们的互动方式与父母的需求相匹配,在关键时期改善与LFD父母的沟通。

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