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Integrating Psychosocial Care into Neuro-Oncology: Challenges and Strategies

机译:将社会心理护理纳入神经肿瘤学:挑战和策略

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摘要

Approximately 256,000 cases of malignant brain and nervous system cancer were diagnosed worldwide during 2012 and 189,000 deaths, with this burden falling more heavily in the developed world. Problematically, research describing the psychosocial needs of people with brain tumors and their carers and the development and evaluation of intervention models has lagged behind that of more common cancers. This may relate, at least in part, to poor survival outcomes and high morbidity associated with this illness, and stigma about this disease. The evidence base for the benefits of psychosocial care in oncology has supported the production of clinical practice guidelines across the globe over the past decade, with a recent mandate to integrate the psychosocial domain and measurement of distress into routine care. Clinical care guidelines for people with brain tumors have emerged, with a building focus on psychosocial and survivorship care. However, researchers will need to work intensively with health care providers to ensure future practice is evidence-based and able to be implemented across both acute and community settings and likely within existing resources.
机译:在2012年期间,全球诊断出约256,000例恶性脑和神经系统癌症病例,并导致189,000例死亡,而在发达国家,这种负担的下降幅度更大。问题在于,描述脑瘤患者及其护理人员的心理社会需求以及干预模型的开发和评估的研究落后于更常见的癌症。这可能至少部分与该疾病相关的生存结果差和发病率高以及对该疾病的污名化有关。过去十年来,社会心理治疗在肿瘤学中的益处的证据基础支持了全球临床实践指南的产生,并且最近的一项任务是将社会心理领域和对痛苦的评估纳入常规治疗。已经出现了针对脑肿瘤患者的临床护理指南,重点是心理社会和生存护理。但是,研究人员将需要与医疗保健提供者进行深入合作,以确保未来的实践是基于证据的,并且能够在急性和社区环境中以及可能在现有资源范围内实施。

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