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Analysis of the advantage features of Beijing surveillance network for Creutzfeldt-Jakob disease

机译：北京克雅氏病监测网络优势特征分析

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>ABSTRACT. Since 2006, China has conducted the surveillance program for Creutzfeldt-Jakob disease (CJD) and other subtypes of prion diseases covering 12 provinces. In this study, the characteristics and special role of Beijing CJD surveillance network in the national CJD surveillance system were analyzed. Based on the registered permanent resident places, all reporting suspected CJD cases and diagnosed CJD cases via Beijing CJD surveillance network between 2006 and 2013 were grouped as the cases from Beijing and from outside of Beijing. Both numbers of the suspected and diagnosed CJD cases via Beijing CJD surveillance network constantly increased along with the years, totally 532 reporting cases and 192 diagnosed CJD cases were obtained in the past 8 y. About 75% of suspected and diagnosed CJD cases via Beijing CJD surveillance network came from other provinces, mainly from neighboring provinces. Altogether, 46 different hospitals in the Beijing region have reported suspected CJD cases to the CJD surveillance system during the period from 2006 to 2013. Five hospitals continually reported suspected CJD cases during those 8 y and 5 other hospitals had reported cases except for 1 to 2 y. Additionally, we found that the diagnosed CJD patients from Beijing region had less numbers of hospital transfer and shorter interval from the disease onset to the final diagnosis than those outside of Beijing. It indicates that as the most important component, Beijing CJD surveillance network functions more actively, which supplies the special medical services not only for Beijing residents but also for patients from all of China.
机译：>摘要。自2006年以来，中国已开展了针对克雅氏病（CJD）和其他亚型ion病毒疾病亚型的监测计划，覆盖12个省。本研究分析了北京CJD监测网络在全国CJD监测系统中的特点和特殊作用。根据已登记的永久居民居住地，将2006年至2013年之间通过北京CJD监控网络举报的所有疑似CJD病例和诊断出的CJD病例归类为来自北京和北京以外地区的病例。随着时间的流逝，通过北京CJD监测网络发现的疑似和确诊的CJD病例数均在逐年增加，在过去8年中共获得532例报告病例和192例确诊为CJD病例。通过北京CJD监测网络发现的疑似和确诊的CJD病例中，约有75％来自其他省份，主要来自邻近省份。在2006年至2013年期间，北京地区共有46家不同的医院向CJD监测系统报告了疑似CJD病例。在这8年中，有5家医院连续报告了CJD疑似病例，而其他1到2家医院中有5家医院报告了疑似CJD病例。 y。此外，我们发现，与北京以外地区相比，来自北京地区的已确诊CJD患者的医院转诊次数较少，从疾病发作到最终诊断的间隔时间较短。这表明，北京CJD监控网络作为最重要的组成部分，发挥了更加积极的作用，不仅为北京居民而且为全中国的患者提供特殊的医疗服务。

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