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首页> 美国卫生研究院文献>British Journal of Cancer >The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study
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The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study

机译：参加英国癌症治疗中心的患者的研究重点：经过修改的名义小组研究的结果

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摘要

Members of the public are increasingly consulted over health care and research priorities. Patient involvement in determining cancer research priorities, however, has remained underdeveloped. This paper presents the findings of the first consultation to be conducted with UK cancer patients concerning research priorities. The study adopted a participatory approach using a collaborative model that sought joint ownership of the study with people affected by cancer. An exploratory, qualitative approach was used. Consultation groups were the main method, combining focus group and nominal group techniques. Seventeen groups were held with a total of 105 patients broadly representative of the UK cancer population. Fifteen areas for research were identified. Top priority areas included the impact cancer has on life, how to live with cancer and related support issues; risk factors and causes of cancer; early detection and prevention. Although biological and treatment related aspects of science were identified as important, patients rated the management of practical, social and emotional issues as a higher priority. There is a mismatch between the research priorities identified by participants and the current UK research portfolio. Current research activity should be broadened to reflect the priorities of people affected by the disease.
机译：越来越多地向公众咨询医疗保健和研究的重点。然而，患者参与确定癌症研究重点的工作仍未得到充分发展。本文介绍了将与英国癌症患者进行的有关研究重点的首次咨询的结果。该研究采用协作模型的参与式方法，该模型寻求与癌症患者共同拥有该研究。使用了探索性，定性的方法。协商小组是主要方法，结合了焦点小组和名义小组技术。共举行了17组的研究，共有105位患者广泛代表了英国的癌症人群。确定了十五个研究领域。最优先考虑的领域包括癌症对生活的影响，如何与癌症一起生活以及相关的支持问题；癌症的危险因素和原因；早期发现和预防。尽管人们认为与生物学和治疗相关的科学领域很重要，但患者将管理实际，社会和情感问题视为更高的优先事项。参与者确定的研究重点与当前的英国研究组合之间存在不匹配。当前的研究活动应该扩大以反映受该疾病影响的人们的优先事项。

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