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首页> 美国卫生研究院文献>BMC Pediatrics >Early comprehensive care of preterm infants—effects on quality of life childhood development and healthcare utilization: study protocol for a cohort study linking administrative healthcare data with patient reported primary data
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Early comprehensive care of preterm infants—effects on quality of life childhood development and healthcare utilization: study protocol for a cohort study linking administrative healthcare data with patient reported primary data

机译：早产儿的早期综合护理-对生活质量儿童发育和医疗保健利用的影响：一项将行政医疗保健数据与患者报告的主要数据联系起来的队列研究的研究方案

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BackgroundAbout 9 % of all children in Germany are born preterm. Despite significant improvements of medical care, preterm infants are at a greater risk to develop short and long term health complications. Negative consequences of preterm birth include neurodevelopmental disabilities, behavioral problems or learning disorders. Most data on effects of prematurity are derived from single or multi-center studies and not population-based.Since some of the long term problems of preterm delivery are associated with a disturbed parent-child interaction originating in the neonatal period, several intervention programs became available aiming to strengthen the early parent-child relationship. However, there is insufficient knowledge regarding the psychosocial and socioeconomic impact of these interventions. Prior to introducing them into routine care, those effects have to be rigorously evaluated.The population-based cohort study EcoCare-PIn (Early comprehensive Care of Preterm Infants—effects on quality of life, childhood development, and healthcare utilization) will investigate the following primary research questions: 1) What are the short- and long-term consequences of preterm birth with regard to parental stress, parent-child relationship, childhood development, quality of life and healthcare utilization including costs?2) Does early family-centered psychosocial care prevent the hypothesized negative consequences of preterm birth on the above mentioned outcomes?
机译：背景德国约有9％的儿童早产。尽管医疗服务有了显着改善，但早产婴儿患短期和长期健康并发症的风险更大。早产的负面后果包括神经发育障碍，行为问题或学习障碍。有关早产影响的大多数数据来自单中心或多中心研究，而不是基于人群的研究。由于某些早产的长期问题与新生儿期父母与子女之间的互动受到干扰有关，因此，一些干预计划得以实施。旨在加强早期的亲子关系。但是，关于这些干预措施的社会心理影响的知识不足。在将其引入常规护理之前，必须严格评估这些影响。基于人群的队列研究EcoCare-PIn（早产儿的早期全面护理-对生活质量，儿童发育和医疗保健利用的影响）将进行以下调查：主要研究问题：1）早产对父母的压力，亲子关系，儿童发展，生活质量和医疗保健利用（包括费用）的短期和长期影响是什么？2）早期以家庭为中心的社会心理能否预防早产对上述结局的假设负面影响？

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