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首页> 美国卫生研究院文献>BMJ Open Respiratory Research >Randomised clinical trial of an early palliative care intervention (SUPPORT) for patients with idiopathic pulmonary fibrosis (IPF) and their caregivers: protocol and key design considerations
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Randomised clinical trial of an early palliative care intervention (SUPPORT) for patients with idiopathic pulmonary fibrosis (IPF) and their caregivers: protocol and key design considerations

机译：特发性肺纤维化（IPF）患者及其护理者的早期姑息治疗干预（SUPPORT）随机临床试验：方案和主要设计注意事项

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IntroductionIdiopathic pulmonary fibrosis (IPF), a progressive life-limiting lung disease affects approximately 128 000 newly diagnosed individuals in the USA annually. IPF, a disease of ageing associated with intense medical and financial burden, is expected to grow in incidence globally. Median survival from diagnosis is 3.8 years, and many of these patients succumb to a rapid death within 6 months. Despite the fatal prognosis, we have found that patients and caregivers often fail to understand the poor prognosis as the disease relentlessly progresses. Based on feedback from patients and families living with IPF, we developed the S-Symptom Management, U-Understanding the Disease, P-Pulmonary Rehabilitation, P-Palliative Care, O-Oxygen Therapy, R-Research Considerations and T-Transplantation (‘SUPPORT') intervention to increase knowledge of the disease, teach self-management strategies and facilitate preparedness with end of life (EOL) planning.
机译：简介特发性肺纤维化（IPF）是一种进行性的限制生命的肺部疾病，每年在美国影响约128 000新诊断的个体。 IPF是一种与严重的医疗和财务负担相关的衰老疾病，预计在全球范围内发病率会增加。诊断中位生存期为3.8年，其中许多患者在6个月内迅速死亡。尽管预后很差，但我们发现，随着疾病的不断发展，患者和护理人员常常无法理解预后不良。根据IPF患者和家属的反馈意见，我们开发了S症状管理，U了解疾病，P肺康复，P姑息治疗，O氧疗法，R研究注意事项和T移植（'支持”）以增加对该疾病的了解，教授自我管理策略并促进生命终结（EOL）计划的准备。

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