首页> 美国卫生研究院文献>BMJ Open >Filling the gaps in SARDs research: collection and linkage of administrative health data and self-reported survey data for a general population-based cohort of individuals with and without diagnoses of systemic autoimmune rheumatic disease (SARDs) from British Columbia Canada
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Filling the gaps in SARDs research: collection and linkage of administrative health data and self-reported survey data for a general population-based cohort of individuals with and without diagnoses of systemic autoimmune rheumatic disease (SARDs) from British Columbia Canada

机译:填补SARDs研究的空白:来自加拿大不列颠哥伦比亚省的以一般人群为基础的有或没有诊断为系统性自身免疫性风湿病(SARDs)的个体的行政健康数据和自我报告的调查数据的收集和链接

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摘要

PurposeSystemic autoimmune rheumatic diseases (SARDs) are a group of debilitating autoimmune diseases, including systemic lupus erythematosus and related disorders. Assessing the healthcare and economic burden of SARDs has been challenging: while administrative databases can be used to determine healthcare utilisation and costs with minimal selection and recall bias, other health, sociodemographic and economic data have typically been sourced from highly selected, clinic-based cohorts. To address these gaps, we are collecting self-reported survey data from a general population-based cohort of individuals with and without SARDs and linking it to their longitudinal administrative health data.
机译:目的全身性自身免疫性风湿性疾病(SARDs)是一组使人衰弱的自身免疫性疾病,包括系统性红斑狼疮和相关疾病。评估SARD的医疗保健和经济负担一直是一项挑战:尽管可以使用行政数据库以最少的选择和召回偏差来确定医疗保健的利用和成本,但其他健康,社会人口统计学和经济数据通常来自高度选择的基于临床的人群。为了解决这些差距,我们从具有和没有SARD的一般人群中收集自我报告的调查数据,并将其与他们的纵向行政健康数据相关联。

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