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首页> 美国卫生研究院文献>The Cochrane Database of Systematic Reviews >Interventions for patients and caregivers to improve knowledge of sickle cell disease and recognition of its related complications
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Interventions for patients and caregivers to improve knowledge of sickle cell disease and recognition of its related complications

机译：对患者和护理人员的干预措施以提高对镰状细胞病的认识并认识到其相关并发症

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摘要

BackgroundSickle cell disease is a group of genetic diseases which is especially prevalent in tropical and subtropical regions; however, forced migration and ongoing population movement have spread it throughout the world, with estimated birth rates reaching 0.49 per 1000 in the Americas, 0.07 per 1000 in Europe, 0.68 per 1000 in South and Southeast Asia, and 10.68 per 1000 in Africa. Life for individuals with sickle cell disease can be affected by repeated acute complications and compounded by progressive organ damage. Studies reveal that when people with chronic illness learn self‐management, their clinical outcomes and quality of life improves; and they show lower dependence on healthcare services. There are, however, no reviews identifying which interventions improve knowledge and little is known about the impact of patient or care‐giver knowledge on clinical and psychosocial outcomes in people with sickle cell disease.
机译：背景镰状细胞病是一组遗传病，在热带和亚热带地区尤为普遍；但是，强迫移民和持续的人口流动已将其传播到世界各地，据估计，美洲的出生率达到每千人0.49，欧洲为每千人0.07，南亚和东南亚为每千人0.68，非洲为每千人10.68。镰状细胞病患者的生命可能会受到反复的急性并发症的影响，并受到进行性器官损害的影响。研究表明，患有慢性病的人学习自我管理后，他们的临床结局和生活质量将得到改善。而且他们对医疗保健服务的依赖性降低。但是，目前尚无关于确定哪些干预措施可以提高知识水平的评论，而对于患者或护理人员知识对镰状细胞病患者的临床和社会心理结果的影响知之甚少。

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