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A Multidisciplinary Consensus for Clinical Care and Research Needs for Sturge-Weber Syndrome

机译：临床护理和Sturge-Weber综合征研究需求的多学科共识

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摘要

Background and RationaleSturge-Weber syndrome (SWS) is a neurocutaneous disorder associated with port wine birthmark, leptomeningeal capillary malformations, and glaucoma. It is associated with an unpredictable clinical course. Due to its rarity and complexity, many physicians are unaware of the disease and its complications. A major focus moving ahead will be to turn knowledge gaps and unmet needs into new research directions.

机译：背景与基本原理Sturge-Weber综合征（SWS）是与波特酒胎记，软脑膜毛细血管畸形和青光眼相关的神经性皮肤疾病。它与不可预测的临床过程相关。由于其稀有性和复杂性，许多医生并未意识到这种疾病及其并发症。未来的主要重点是将知识差距和未满足的需求转变为新的研究方向。

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期刊名称 other
作者
Alejandro J. De la Torre; Aimee F. Luat; Csaba Juhász; Ho Mai Lan; Davis P. Argersinger; Kara M. Cavuoto; Mabel Enriquez-Algeciras; Stephanie Tikkanen; Paula North; Craig N. Burkhart; Harry T. Chugani; Karen L. Ball; Anna Lecticia Pinto; Jeffrey A. Loeb;
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年(卷),期 -1(84),-1
年度 -1
页码 11–20
总页数 22
原文格式 PDF
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关键词
Sturge-Weber syndrome consensus statement imaging treatment;

机译：Sturge-Weber综合征;共识声明;影像学;治疗;

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专利

1. A Multidisciplinary Consensus for Clinical Care and Research Needs for Sturge-Weber Syndrome [J] . Alejandro J. De la Torre, Aimee F. Luat, Csaba Juhász, Pediatric neurology . 2018,第期

机译：用于刺激和孢子综合征的临床护理和研究需求的多学科共识
2. Consensus summary statement of the International Multidisciplinary Consensus Conference on Multimodality Monitoring in Neurocritical Care: A statement for healthcare professionals from the Neurocritical Care Society and the European Society of Intensive Care Medicine [J] . Intensive care medicine . 2014,第9期

机译：关于神经重症监护多模式监测的国际多学科共识会议的共识摘要声明：针对神经重症监护协会和欧洲重症监护医学协会的医疗专业人员的声明
3. Consensus Summary Statement of the International Multidisciplinary Consensus Conference on Multimodality Monitoring in Neurocritical Care A statement for healthcare professionals from the Neurocritical Care Society and the European Society of Intensive Care Medicine [J] . Le Roux Peter, Menon David K., Citerio Giuseppe, Neurocritical care . 2014,第Suppla2期

机译：关于神经重症监护中多模式监测的国际多学科共识会议的共识摘要声明，来自神经重症监护协会和欧洲重症监护医学协会的医疗专业人员的声明
4. Cardiorenal Syndrome Type 5: Clinical Presentation, Pathophysiology and Management Strategies from the Eleventh Consensus Conference of the Acute Dialysis Quality Initiative (ADQI) [C] . Ravindra L Mehta, Hamid Rabb, Andrew D. Shaw, Conference on Biomarkers in AKI (Acute Kidney Injury) . 2013

机译：生态学综合征5型：临床介绍，病理生理学和管理策略来自第十一协商会会议的急性透析质量倡议（ADQI）
5. A survey of human genetic variation reveals a basis for Sturge-Weber syndrome and non-syndromic port-wine stain. [D] . Shirley, Matthew D. 2013

机译：对人类遗传变异的调查揭示了Sturge-Weber综合征和非综合征性波特酒色斑的基础。
6. Best Practices in the Clinical Management of Progressive Supranuclear Palsy and Corticobasal Syndrome: A Consensus Statement of the CurePSP Centers of Care [O] . Brent Bluett, Alexander Y. Pantelyat, Irene Litvan, 2021

机译：进步性上核麻痹和皮质缺卵综合征临床管理中的最佳实践：Curepsp护理中心的共识声明
7. A Multidisciplinary Consensus for Clinical Care and Research Needs for Sturge-Weber Syndrome [O] . Alejandro J. De la Torre, Aimee F. Luat, Csaba Juhász, 2018

机译：用于孢子胨综合征的临床护理和研究需求的多学科共识

A Multidisciplinary Consensus for Clinical Care and Research Needs for Sturge-Weber Syndrome

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