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Twelve Lessons Learned for Effective Research Partnerships Between Patients Caregivers Clinicians Academic Researchers and Other Stakeholders

机译:为患者护理人员临床医生学术研究人员和其他利益相关者之间的有效研究合作而学习的十二课

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摘要

Research increasingly means that patients, caregivers, health professionals, other stakeholders, and academic investigators work in partnership. This requires effective collaboration rooted in mutual respect, involvement of all participants, and good communication. Having conducted such partnered research over multiple projects, and having recently completed a project together funded by the Patient-Centered Outcomes Research Institute, we collaboratively developed a list of 12 lessons we have learned about how to ensure effective research partnerships. To foster a culture of mutual respect, hold early in-person meetings, with introductions focused on motivation, offer appropriate orientation for everyone, and maintain awareness of individual and project goals. To actively involve all team members, it is important to ensure sufficient funding for everyone’s participation, to ask for and recognize diverse contributions, and to seek the input of quiet members. To facilitate good communication, teams should carefully consider labels, avoid jargon and acronyms, judiciously use homogeneous and heterogeneous subgroups, and keep progress visible. In offering pragmatic, actionable lessons we have learned through our separate and shared experiences, we hope to help foster more patient-centered research via productive and enjoyable research collaborations.
机译:研究越来越意味着患者,护理人员,卫生专业人员,其他利益相关者和学术研究人员将携手合作。这需要植根于相互尊重,所有参与者参与和良好沟通的有效协作。在多个项目上进行了此类合作研究之后,最近又以患者为中心的结果研究所共同完成了一个项目,我们共同制定了一份清单,共12堂课程,我们已从中汲取了有关如何确保有效的研究伙伴关系的经验。为了培养相互尊重的文化,应尽早举行面对面的会议,并以动机为重点进行介绍,为每个人提供适当的指导,并保持对个人和项目目标的认识。为了使所有团队成员积极参与,重要的是要确保有足够的资金供每个人参与,要求并认可各种贡献,并寻求安静成员的参与。为了促进良好的沟通,团队应该仔细考虑标签,避免使用专业术语和缩写,明智地使用同质和异类子组,并保持进度可见。在提供我们通过单独和共享的经验中学到的务实,可行的课程时,我们希望通过富有成效和令人愉快的研究合作来帮助开展更多以患者为中心的研究。

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