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Understanding self-management behaviors in symptomatic adults with uncertain etiology using an illness perceptions framework

机译:使用疾病感知框架了解病因不明的有症状成年人的自我管理行为

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摘要

The self-management behaviors of individuals with medical conditions that have an unknown etiology have not been studied. This study assesses the relationship between illness perceptions and various illness self-management behaviors in patients undergoing clinical genomic sequencing to identify a genetic cause for their condition. Hierarchical linear regression, Poisson linear regression, and logistic regression were used to assess the effect of illness perceptions (i.e., perceived consequences, timeline, personal control, treatment control, identity, concern, understanding, emotional impact, and causal beliefs as measured by the Brief Illness Perceptions Questionnaire) on healthcare use, prescription medication use, and doctor recommended supplement use, respectively (n = 200). Analyses revealed that (1) illness identity beliefs were positively associated with healthcare use (β =.20, p =.04), (2) both treatment control beliefs (B =.03, p =.02) and genetic causal beliefs (B =.17, p =.049) were positively associated with prescription medication use, and (3) both timeline beliefs (OR =1.23, p =.02) and emotional impact (OR =1.20, p =.02) were positively associated with doctor recommended supplement use. These findings can be used to inform the development of guidelines for treating patients who are seeking a genetic diagnosis for their illness.
机译:尚未研究病因未知的医学状况患者的自我管理行为。这项研究评估了接受临床基因组测序以鉴定其病因的患者的疾病知觉与各种疾病自我管理行为之间的关系。分层线性回归,泊松线性回归和逻辑回归用于评估疾病知觉的影响(即,知觉结果,时间表,个人控制,治疗控制,身份,关注,理解,情感影响和因果信念),关于医疗保健使用,处方药使用和医生推荐使用补充剂的简要疾病知觉问卷(n = 200)。分析显示,(1)疾病身份信念与医疗保健使用呈正相关(β= .20,p = .04),(2)治疗控制信念(B = .03,p = .02)和遗传因果信念( B = .17,p = .049)与处方药的使用呈正相关,(3)时间轴信念(OR = 1.23,p = .02)和情感影响(OR = 1.20,p = .02)均呈正相关与医生建议补充使用。这些发现可用于为正在寻求疾病遗传诊断的患者的治疗指南的制定提供信息。

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