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Written and Spoken Narratives about Health and Cancer Decision Making: A Novel Application of Photovoice

机译:关于健康和癌症决策的书面和口语叙述:Photovoice的新应用

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摘要

Photovoice is a community-based participatory research method that researchers have used to identify and address individual and community health needs. We developed an abbreviated photovoice project to serve as a supplement to a National Cancer Institute (NCI)-funded pilot study focusing on prostate cancer (PrCA) that was set in a faith-based African-American community in South Carolina. We used photovoice for three reasons: (1) to enhance communication between study participants and researchers; (2) to empower African-American men and women to examine their health decisions through photographs; and 3) to better understand how participants from this community make health-related decisions. The 15 individuals participating in the photovoice project were asked to photograph aspects of their community that informed their health-related decisions. Participants provided written and oral narratives to describe the images in a small sample of photographs. Four primary themes emerged in participants’ photographs and narratives: 1) food choices; 2) physical activity practices; 3) community environment and access to care; and 4) influences of spirituality and nature on health. Although written and audio-recorded narratives were similar in content, the audio-recorded responses were more descriptive and emotional. Results suggest that incorporating audio-recorded narratives in community photovoice presentations may have a greater impact than written narratives on health promotion and decision-making and policy-makers due to an increased level of detail and personalization. In conclusion, photovoice strengthened the parent study and empowered participants by making them more aware of factors influencing their health decisions.
机译:Photovoice是一种基于社区的参与式研究方法,研究人员已使用该方法识别和解决个人和社区的健康需求。我们开发了一个简短的photovoice项目,作为国家癌症研究所(NCI)资助的一项针对前列腺癌(PrCA)的试点研究的补充,该研究建立在南卡罗来纳州一个基于信仰的非裔美国人社区中。我们使用photovoice的原因有以下三个:(1)增强研究参与者与研究人员之间的沟通; (2)授权非裔美国人通过照片检查其健康决定; 3)更好地了解这个社区的参与者如何做出与健康相关的决定。要求参加photovoice项目的15个人拍摄他们社区中与健康有关的决定的信息。参与者提供了书面和口头叙述,以描述少量照片样本中的图像。参与者的照片和叙述中出现了四个主要主题:1)食物的选择; 2)食物的选择。 2)体育活动习惯; 3)社区环境和获得护理的机会; 4)灵性和自然对健康的影响。尽管书面叙事和录音叙事的内容相似,但录音叙事的回应更具描述性和情感性。结果表明,由于详细程度和个性化程度的提高,在社区光声演示中纳入录音叙事可能比书面叙事对健康促进,决策和政策制定者的影响更大。总之,光声使父母更加了解影响他们健康决定的因素,从而加强了父母的研究并增强了参与者的能力。

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