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Exploring the Personal Reality of Disability and Recovery: A Tool for Empowering the Rehabilitation Process

机译:探索残障和康复的个人现实:增强康复过程的工具

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摘要

People experiencing disability and chronic disease often feel powerless, relinquishing medical control to “more knowledgeable” professionals. This article presents qualitative and quantitative results from three individual patients experiencing an emerging procedure called Recovery Preference Exploration (RPE). To inspire greater patient involvement, self-direction, and individual choice, we instructed participants to create an imagined recovery path, exposing recovery preferences while learning about clinical rehabilitation concepts. Results uncovered important values and feelings about disability, providing a richer context for patient evaluation and treatment goal modification. Applying mixed methods, RPE is presented as an explanatory process for quantifying recovery preferences in a way that stimulates rich narrative of how people see different types of disabilities. RPE shows promise for increasing depth of discussions among patients, family, and clinicians. RPE may promote greater quality of life through patient empowerment by directed learning, increased communication, and enhanced self-knowledge.
机译:患有残疾和慢性病的人常常感到无能为力,将医疗控制权交给了“知识渊博”的专业人员。本文介绍了三名正在经历一种称为“恢复偏好探索”(RPE)的新兴程序的患者的定性和定量结果。为了激发患者更多的参与,自我指导和个人选择,我们指示参与者创建想象中的康复路径,在了解临床康复概念的同时暴露康复偏好。结果揭示了关于残疾的重要价值和感觉,为患者评估和治疗目标的修改提供了更丰富的背景。应用混合方法,RPE作为一种量化恢复偏好的解释性过程,以激发人们如何看待不同类型残疾的丰富叙述。 RPE显示出有望在患者,家庭和临床医生之间增加讨论的深度。 RPE可以通过定向学习,增强沟通和增强自我知识来增强患者能力,从而提高生活质量。

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