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A survey of the European Reference Network EpiCARE on clinical practice for selected rare epilepsies

机译:欧洲参考网络综合调查对选定珍稀癫痫的临床实践

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摘要

Clinical care of rare and complex epilepsies is challenging, because evidence‐based treatment guidelines are scarce, the experience of many physicians is limited, and interdisciplinary treatment of comorbidities is required. The pathomechanisms of rare epilepsies are, however, increasingly understood, which potentially fosters novel targeted therapies. The objectives of our survey were to obtain an overview of the clinical practice in European tertiary epilepsy centers treating patients with 5 arbitrarily selected rare epilepsies and to get an estimate of potentially available patients for future studies.
机译:稀有和复杂的癫痫的临床护理是具有挑战性的,因为基于循证的治疗指南是稀缺的,许多医生的经验是有限的,并且需要对机理的跨学科治疗。然而,罕见的癫痫于罕见的癫痫的土程机制越来越地理解,这潜在促进了新型靶向疗法。我们的调查目标是概述欧洲第三节癫痫中心治疗5名任意选择的罕见癫痫患者的临床实践,并估计潜在的未来研究患者。

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