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Time for revolution? Enhancing meaningful involvement of people living with HIV and affected communities in HIV cure-focused science

机译:革命的时间?加强艾滋病毒治愈艾滋病毒和受影响的社区生活的有意义的涉及聚焦科学

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摘要

Involving affected communities and people living with HIV (PLHIV) in HIV cure-focused clinical trials has ethical and practical benefits. However, there can be barriers to meaningful involvement of ‘lay people’ in scientific research meaning community consultation is often limited or tokenistic. This paper reports on an Australian project, the INSPIRE project (Improve, Nurture and Strengthen education, collaboration, and communication between PLHIV and Researchers), which aimed to explore barriers and enablers to enactment of the principles of meaningful involvement of PLHIV (MIPA) and affected communities in HIV cure-focused research.
机译:涉及受影响的艾滋病毒治愈艾滋病毒(PlHIV)的受影响的社区和患有艾滋病毒的临床试验具有道德和实用的益处。但是,“在科学研究中”劳动人民“意义的意义,可能存在障碍,这意味着社区咨询往往是有限的或令牌。本文关于澳大利亚项目,激励项目(改善,培养和加强教育,合作和普及和研究人员之间的沟通),旨在探索障碍和使能使PLHIV(MIPA)和受艾滋病毒治愈重点研究的受影响的社区。

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