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首页> 美国卫生研究院文献>SAGE Choice >It was then that I thought ‘whaat? This is not my Dad: The implications of the ‘still the same person’ narrative for children and young people who have a parent with dementia
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It was then that I thought ‘whaat? This is not my Dad: The implications of the ‘still the same person’ narrative for children and young people who have a parent with dementia

机译：那时我想到了‘哇？这不是我的父亲：仍然是同一个人的叙述对父母患有痴呆症的儿童和年轻人的影响

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摘要

This research used auto/biographical interviews to explore the experiences of 19, 8 to 31 year olds who had a parent with dementia. Thematic analysis revealed challenges occasioned by the master narrative that people with dementia are ‘still’ the same person they were prior to the onset of their condition. While this notion is – rightly – at the heart of person-centered care in dementia services, the ‘still’ discourse conflicts with the experiences of young people. Their accounts suggest that the construction of their parent as the same person is not helpful and that, furthermore, expectations that they will behave and feel towards that parent as they did before are a source of distress in what is already a challenging situation. This paper highlights the need to equip young people with support that acknowledges that their parent may well be drastically different to the Mum or Dad they previously ‘knew’.
机译：这项研究使用自传/传记访谈来探讨19、8至31岁患有痴呆症的父母的经历。主题分析揭示了大师叙事带来的挑战，即痴呆症患者在病情发作之前“仍然”是同一个人。虽然这一概念正确地是痴呆症服务中以人为本的护理的核心，但“静止”的论述与年轻人的经历相矛盾。他们的陈述表明，将父母作为同一个人来构筑并没有帮助，而且，期望他们会像以前一样对父母做事和感觉，这在已经充满挑战的情况下令人不安。本文强调需要为年轻人提供支持，这需要承认他们的父母很可能与他们以前“认识”的妈妈或爸爸完全不同。

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