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The experiences of and need for palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review

机译：对运动神经元疾病和非正式护理人员的人的经验姑息治疗的姑息治疗：定性系统审查

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Despite being a terminal neurodegenerative disease, the role of palliative care is less recognised for motor neurone disease than for other life-limiting conditions. Understanding the experiences of, and need for, palliative care for patients and carers is key to configuring optimal policy and healthcare services.

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期刊名称 SAGE Choice
作者
Kate Flemming; Victoria Turner; Samantha Bolsher; Bill Hulme; Elizabeth McHugh; Ian Watt;
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年(卷),期 -1(34),6
年度 -1
页码 -1
总页数 23
原文格式 PDF
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关键词
Motor neurone disease; amyotrophic lateral sclerosis; qualitative research; systematic review; palliative care; caregivers;

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专利

1. The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review [J] . Palliative medicine . 2020,第6期

机译：对运动神经元疾病的人和其非正式护理人员的人们的经验，适用于，姑息治疗：一个定性系统审查
2. The Palliative Care Needs of Adult Patients and Their Informal Carers Living with Motor Neuron Disease (MND), or Bereaved Carers of People with MND: a Systematic Review of Qualitative Research [J] . Flemming Kate, Turner Victoria, Watt Ian, Journal of pain and symptom management. . 2018,第6期

机译：成人患者的姑息治疗需求及其与运动神经元疾病（MND）的非正式护理人员，或患有MND的人的失去遗传的护理人员：对定性研究的系统审查
3. Experiences of burden, needs, rewards and resilience in family caregivers of people living with Motor Neurone Disease/Amyotrophic Lateral Sclerosis: A secondary thematic analysis of qualitative interviews [J] . Weisser Fabia B., Bristowe Katherine, Jackson Diana Palliative medicine . 2015,第8期

机译：运动神经元疾病/肌萎缩性侧索硬化症患者家庭照顾者的负担，需求，奖励和适应力体验：定性访谈的第二主题分析
4. RelaxedCare -Connecting people in care situations: User involvement to collect informal caregivers needs [C] . Marcel B.F. UHR, Bianca REDEL, Martin BIALLAS, AAATE 2015 . 2015

机译：RelaxedCare - 在护理情况下围绕人：用户参与收集非正式护理人员需求
5. The Psychological Needs of Informal Caregivers for People Living with Dementia: Exploring Experiences of Grief and Self-Compassion [D] . ?Mawson, Marsha 2020

机译：正规护理人员对生活的人痴呆的心理需求：悲伤和自悲的探索经验
6. Patients and informal caregivers’ experiences of burden of treatment in lung cancer and chronic obstructive pulmonary disease (COPD): a systematic review and synthesis of qualitative research [O] . Kate Alice Lippiett, Alison Richardson, Michelle Myall, 2019

机译：患者和非正式护理人员在肺癌和慢性阻塞性肺疾病（COPD）中的治疗负担经验：系统的综述和定性研究的综合
7. A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions [O] . Aoun, S.M., Bentley, B., Funk, L., 2013

机译：对运动神经元疾病的家庭照料的十年文献回顾：从照料者负担研究转向姑息治疗干预措施

The experiences of and need for palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review

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