首页> 美国卫生研究院文献>Wiley-Blackwell Online Open >WORKING WITH COMMUNITY HEALTH WORKERS AS ‘VOLUNTEERS’ IN A VACCINE TRIAL: PRACTICAL AND ETHICAL EXPERIENCES AND IMPLICATIONS
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WORKING WITH COMMUNITY HEALTH WORKERS AS ‘VOLUNTEERS’ IN A VACCINE TRIAL: PRACTICAL AND ETHICAL EXPERIENCES AND IMPLICATIONS

机译:与社区卫生工作者一起在疫苗试验中扮演志愿者的角色:实践和道德经验及启示

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摘要

Community engagement is increasingly emphasized in biomedical research, as a right in itself, and to strengthen ethical practice. We draw on interviews and observations to consider the practical and ethical implications of involving Community Health Workers (CHWs) as part of a community engagement strategy for a vaccine trial on the Kenyan Coast. CHWs were initially engaged as an important network to be informed about the trial. However over time, and in response to community advice, they became involved in trial information sharing and identifying potential participants; thereby taking on roles that overlapped with those of employed fieldworkers (FWs). While CHWs involvement was generally perceived as positive and appreciated, there were challenges in their relations with FWs and other community members, partly related to levels and forms of remuneration. Specifically, payment of CHWs was not as high as for FWs and was based on ‘performance’. This extrinsic motivation had the potential to crowd out CHWs intrinsic motivation to perform their pre-existing community roles. CHWs remuneration potentially also contributed to CHWs distorting trial information to encourage community members to participate; and to researchers encouraging CHWs to utilize their social connections and status to increase the numbers of people who attended information giving sessions. Individual consent processes were protected in this trial through final information sharing and consent being conducted by trained clinical staff who were not embedded in study communities. However, our experiences suggest that roles and remuneration of all front line staff and volunteers involved in trials need careful consideration from the outset, and monitoring and discussion over time.
机译:生物医学研究越来越强调社区参与本身就是一项权利,并应加强伦理实践。我们利用访谈和观察来考虑让社区卫生工作者(CHWs)参与肯尼亚肯尼亚海岸疫苗试验的社区参与策略的一部分的实践和道德意义。 CHW最初是一个重要的网络,可以了解该试验。然而,随着时间的流逝,并响应社区的建议,他们开始参与试验信息共享并确定潜在参与者。从而承担与受雇的现场工作人员(FW)重叠的角色。尽管人们普遍认为CHW的参与是积极的,并受到赞赏,但它们与FW和其他社区成员的关系仍存在挑战,部分与薪酬水平和形式有关。具体而言,CHW的支付不如FW的支付,而是基于“绩效”的。这种外部动机有可能挤出CHW的内在动机来履行其先前存在的社区角色。 CHW的报酬也可能导致CHW歪曲审判信息以鼓励社区成员参与;并鼓励研究人员鼓励CHW利用他们的社交关系和地位来增加参加信息发布会的人数。在该试验中,通过最终信息共享和未经过研究社区的训练有素的临床人员进行的同意,保护了个人同意过程。但是,我们的经验表明,参与试验的所有前线工作人员和志愿者的角色和报酬应从一开始就进行认真考虑,并随时间进行监控和讨论。

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