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Informed consent, gatekeepers and go-betweens: negotiating consent in child- and youth-orientated institutions

机译:知情同意,看门人和中间人:在面向儿童和青年的机构中进行谈判同意

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摘要

Gaining informed consent from research participants is widely regarded as central to ethical research practice. This article reports on research which sought to identify contemporary practice in this area amongst researchers working in fields where research participants are often constructed as vulnerable within the research process, and where their potential involvement tends to be mediated by institutional gatekeepers. Drawing on telephone interview and focus group data, the article focuses specifically on the experiences of researchers working with children and young people. It highlights the tensions experienced by many researchers between a personal commitment to an ethical framework which seeks to prioritise the agency and competency of children and young people, and the conditions imposed upon them by working within institutional settings where these principles may be undermined. This research suggests that the consent practices of child- and youth-orientated institutions, however much frowned upon, tend to go largely unchallenged by researchers, to the detriment of the rights of children and young people to opt in and out of research on their own behalf.
机译:获得研究参与者的知情同意被广泛认为是伦理研究实践的核心。本文报道了一些研究,这些研究试图在研究人员中确定这一领域的当代实践,这些领域的研究人员通常被认为是研究过程中的弱势群体,而他们的潜在参与往往是由机构把关者进行调解的。利用电话采访和焦点小组的数据,本文重点关注与儿童和年轻人一起工作的研究人员的经验。它突显了许多研究人员之间的紧张关系,这是个人对道德框架的承诺,该框架旨在优先考虑儿童和年轻人的代理权和能力,以及在可能破坏这些原则的机构环境中工作所施加的条件。这项研究表明,以儿童和青年为中心的研究机构的同意做法,尽管受到了很多皱眉,但在很大程度上并未受到研究人员的挑战,这损害了儿童和年轻人自行选择参加和退出研究的权利。代表。

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