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首页> 外文期刊>BMC Medical Informatics and Decision Making >Accessing and sharing health information for post-discharge stroke care through a national health information exchange platform - a case study
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Accessing and sharing health information for post-discharge stroke care through a national health information exchange platform - a case study

机译：通过国家健康信息交流平台访问和共享出院后中风护理的健康信息-案例研究

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Patients and citizens need access to their health information to get a retrospective as well as a prospective view on their care and rehabilitation processes. However, patients’ health information is stored in several health information systems and interoperability problems often hamper accessibility. In Sweden a national health information exchange (HIE) platform has been developed that enables information exchange between different health information systems. The aim of this study is to explore the opportunities and limitations of accessing and interacting with important health information through the Swedish national HIE platform. A single case study approach was used for this study as an in-depth understanding of the subject was needed. A fictive patient case with a pseudo-name was created based on an interview with a stroke coordinator in Stockholm County. Information access through the national health information exchange platform and available service contracts and application programming interfaces were studied using different scenarios. Based on the scenarios created in this study, patients would be able to access some health related information from their electronic health records using the national health information exchange platform. However, there is necessary information which is not retrievable as it is either stored in electronic health records and eHealth services which are not connected to the national health information exchange platform or there is no service contract developed for these types of information. In addition, patients are not able to share information with healthcare professionals. The national Swedish HIE platform provides the building blocks needed to allow patients online access to their health information in a fragmented and distributed health system. However, more complex interaction scenarios allowing patients to communicate with their health care providers or to update their health related information are not yet supported. Therefore it is of great importance to involve patients throughout the design and evaluation of eHealth services on both national and local levels to ensure that their needs for interoperability and information exchange are met.
机译：患者和公民需要访问他们的健康信息，以便对其医疗保健和康复过程进行回顾和前瞻性观察。但是，患者的健康信息存储在多个健康信息系统中，并且互操作性问题通常会妨碍可访问性。在瑞典，已经开发了国家健康信息交换（HIE）平台，该平台可以在不同的健康信息系统之间进行信息交换。这项研究的目的是探索通过瑞典国家HIE平台访问重要健康信息并与之交互的机会和局限性。由于需要对该主题进行深入了解，因此本研究使用了单个案例研究方法。根据对斯德哥尔摩县一名卒中协调员的采访，创建了一个假名的假名患者病例。使用不同的方案研究了通过国家卫生信息交换平台的信息访问以及可用的服务合同和应用程序编程接口。根据本研究创建的方案，患者将可以使用国家健康信息交换平台从其电子健康记录中访问一些与健康相关的信息。但是，有一些必不可少的信息，因为它们要么存储在未连接到国家卫生信息交换平台的电子健康记录和eHealth服务中，要么没有针对这些类型的信息制定服务合同。此外，患者无法与医疗保健专业人员共享信息。瑞典国家HIE平台提供了必要的构建块，使患者可以在分散且分散的卫生系统中在线访问其卫生信息。但是，尚不支持允许患者与其医疗保健提供者进行通信或更新其健康相关信息的更复杂的交互方案。因此，让患者参与国家和地方各级电子卫生保健服务的设计和评估非常重要，以确保满足他们对互操作性和信息交换的需求。

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