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首页> 外文期刊>BMC Medical Informatics and Decision Making >Discussing life expectancy with surgical patients: Do patients want to know and how should this information be delivered?
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Discussing life expectancy with surgical patients: Do patients want to know and how should this information be delivered?

机译：讨论手术患者的预期寿命：患者是否想知道以及如何提供这些信息？

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Background Predicted patient life expectancy (LE) and survival probability (SP), based on a patient's medical history, are important components of surgical decision-making and informed consent. The objective of this study was to assess patients' interpretation of and desire to know information relating to LE, in addition to establishing the most effective format for discussion. Methods A cross sectional survey of 120 patients (mean age = 68.7 years, range 50–90 years), recruited from general urological and surgical outpatient clinics in one District General and one Teaching hospital in Southwest England (UK) was conducted. Patients were included irrespective of their current diagnosis or associated comorbidity. Hypothetical patient case scenarios were used to assess patients' desire to know LE and SP, in addition to their preferred presentation format. Results 58% of patients expressed a desire to know their LE and SP, if it were possible to calculate, with 36% not wishing to know either. Patients preferred a combination of numerical and pictorial formats in discussing LE and SP, with numerical, verbal and pictorial formats alone least preferred. 71% patients ranked the survival curve as either their first or second most preferred graph, with 76% rating facial figures their least preferred. No statistically significant difference was noted between sexes or educational backgrounds. Conclusion A proportion of patients seem unwilling to discuss their LE and SP. This may relate to their current diagnosis, level of associated comorbidity or degree of understanding. However it is feasible that by providing this information in a range of presentation formats, greater engagement in the shared decision-making process can be encouraged.
机译：背景技术基于患者的病史，预测的患者预期寿命（LE）和生存概率（SP）是手术决策和知情同意的重要组成部分。这项研究的目的是评估患者对LE的理解并希望了解有关LE的信息，以及建立最有效的讨论形式。方法对英格兰西南部（英国）的一所地区综合医院和一所教学医院的泌尿外科和外科门诊的120名患者（平均年龄为68.7岁，范围为50-90岁）进行了横断面调查。不论患者当前的诊断或合并症，均被纳入研究。假设的患者病例情境除了其首选的表现形式外，还用于评估患者了解LE和SP的意愿。结果58％的患者表示希望了解其LE和SP（如果可以计算的话），而36％的患者则不愿意。在讨论LE和SP时，患者偏爱数字和图形格式的组合，最不希望单独使用数字，文字和图形格式。 71％的患者将生存曲线列为第一或第二最喜欢的图，而将76％的面部数字列为最不喜欢的图。性别或受教育程度之间无统计学差异。结论一部分患者似乎不愿意讨论其LE和SP。这可能与他们目前的诊断，相关合并症的程度或了解程度有关。但是，通过以多种表示形式提供此信息是可行的，可以鼓励更大程度地参与共享决策过程。

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