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首页> 外文期刊>BMC Medical Informatics and Decision Making >Tailored e-Health services for the dementia care setting: a pilot study of ‘eHealthMonitor’
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Tailored e-Health services for the dementia care setting: a pilot study of ‘eHealthMonitor’

机译：针对痴呆症护理环境的量身定制的电子保健服务：“ eHealthMonitor”的初步研究

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Background The European eHealthMonitor project (eHM) developed a user-sensitive and interactive web portal for dementia care: the eHM Dementia Portal (eHM-DP). It aims to provide targeted and personalized support for informal caregivers of people with dementia in a home-based care setting. The objective of the pilot study was to obtain feedback on the eHM-DP from two user perspectives (caregivers and medical professionals), focusing on caregiver empowerment, decision aid, and the perceived benefits of the eHM-DP. Methods The study on the eHM-DP was conducted from March 2014 to June 2014. The methodological approach followed a user-participatory design with a total number of 42 participants. The study included caregivers of people with dementia and medical professionals (MPs) from the metropolitan region of Erlangen-Nürnberg (Bavaria, Germany). Study participants were interviewed face-to-face with semi-structured, written interviews. Results Caregivers indicated a high degree of perceived support by the eHM-DP and of provided decision aid. In total, 89?% of caregivers and 54?% of MPs would use the eHM-DP if access were provided. The primary benefits participants perceived were the acquisition of individualized information, computerized interaction between caregivers and MPs, empowerment in health-related decisions and comprehensive insights into the progress of the disease. Major recommendations for improving the eHM-DP encompassed: an active search functionality based on predefined terms, the implementation of a chatroom for caregivers, an upload function and alerts for MPs, as well as the overall design. Conclusions Our study is the first to have provided new insights and results on an interactive and needs-oriented web portal, endeavouring towards empowerment and assistance in decision making for caregivers as well as MPs within the realm of caring for patients with dementia. The acceptance and willingness to use the eHM-DP emphasizes the potential of eHealth services for community-based dementia care settings.
机译：背景技术欧洲eHealthMonitor项目（eHM）开发了一个用于痴呆症护理的用户敏感的交互式Web门户：eHM痴呆门户（eHM-DP）。它旨在为基于家庭护理的痴呆症患者的非正式护理人员提供针对性的个性化支持。试点研究的目的是从两个用户角度（护理人员和医疗专业人员）获得有关eHM-DP的反馈，重点是护理人员的授权，决策帮助以及eHM-DP的感知收益。方法对eHM-DP的研究于2014年3月至2014年6月进行。该方法采用用户参与设计，共有42名参与者。这项研究包括患有痴呆症的人以及来自大都市地区Erlangen-Nürnberg（德国巴伐利亚）的医疗专业人员（MP）的照料者。通过半结构化的书面访谈对研究参与者进行了面对面的访谈。结果护理人员表明，eHM-DP给予了高度的支持，并提供了决策帮助。如果提供访问权限，则总共有89％的护理人员和54％的MP将使用eHM-DP。参与者认为的主要好处是获得个性化信息，照顾者与国会议员之间的计算机交互，在健康相关决策中的授权以及对疾病进展的全面了解。改进eHM-DP的主要建议包括：基于预定义术语的主动搜索功能，护理人员聊天室的实现，MP的上载功能和警报以及总体设计。结论我们的研究是第一个在交互式且以需求为导向的门户网站上提供新见解和结果的研究，致力于在照顾痴呆症患者领域内为护理人员和国会议员的决策提供能力和协助。使用eHM-DP的接受和意愿强调了eHealth服务在社区痴呆症护理环境中的潜力。

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