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首页> 外文期刊>BMC Medical Informatics and Decision Making >Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture
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Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture

机译：支持儿童慢性病管理的Web 2.0系统：通用体系结构的模式语言表示

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Background Chronic disease management is a global health concern. By the time they reach adolescence, 10–15% of all children live with a chronic disease. The role of educational interventions in facilitating adaptation to chronic disease is receiving growing recognition, and current care policies advocate greater involvement of patients in self-care. Web 2.0 is an umbrella term for new collaborative Internet services characterized by user participation in developing and managing content. Key elements include Really Simple Syndication (RSS) to rapidly disseminate awareness of new information; weblogs (blogs) to describe new trends, wikis to share knowledge, and podcasts to make information available on personal media players. This study addresses the potential to develop Web 2.0 services for young persons with a chronic disease. It is acknowledged that the management of childhood chronic disease is based on interplay between initiatives and resources on the part of patients, relatives, and health care professionals, and where the balance shifts over time to the patients and their families. Methods Participatory action research was used to stepwise define a design specification in the form of a pattern language. Support for children diagnosed with diabetes Type 1 was used as the example area. Each individual design pattern was determined graphically using card sorting methods, and textually in the form Title, Context, Problem, Solution, Examples and References. Application references were included at the lowest level in the graphical overview in the pattern language but not specified in detail in the textual descriptions. Results The design patterns are divided into functional and non-functional design elements, and formulated at the levels of organizational, system, and application design. The design elements specify access to materials for development of the competences needed for chronic disease management in specific community settings, endorsement of self-learning through online peer-to-peer communication, and systematic accreditation and evaluation of materials and processes. Conclusion The use of design patterns allows representing the core design elements of a Web 2.0 system upon which an 'ecological' development of content respecting these constraints can be built. Future research should include evaluations of Web 2.0 systems implemented according to the architecture in practice settings.
机译：背景技术慢性病管理是全球性的健康问题。到青春期时，所有儿童中有10-15％患有慢性疾病。教育干预在促进适应慢性疾病中的作用越来越受到人们的认可，当前的护理政策提倡患者更多地参与自我护理。 Web 2.0是新的协作Internet服务的统称，其特征是用户参与开发和管理内容。关键要素包括：真正简单的联合组织（RSS），以快速传播对新信息的意识;描述新趋势的网络日志（blog），用于共享知识的wiki和用于在个人媒体播放器上提供信息的播客。这项研究探讨了为患有慢性疾病的年轻人开发Web 2.0服务的潜力。公认的是，儿童，慢性病的治疗是基于患者，亲戚和医疗保健专业人员的计划和资源之间的相互作用，并且这种平衡会随着时间的流逝转移到患者及其家人。方法采用参与式行动研究以模式语言的形式逐步定义设计规范。以诊断为1型糖尿病儿童的支持为例。使用卡分类方法以图形方式确定每个单独的设计模式，并以标题，上下文，问题，解决方案，示例和参考的形式在文本上确定。应用程序参考已包含在模式语言的图形概述的最低级别中，但未在文本描述中详细指定。结果设计模式分为功能性和非功能性设计元素，并在组织，系统和应用程序设计的层次上进行制定。设计元素指定获取材料以开发特定社区环境中慢性病管理所需的能力，通过在线对等通信认可自我学习以及对材料和过程进行系统的认证和评估。结束语设计模式的使用允许表示Web 2.0系统的核心设计元素，可以在其上构建尊重这些约束的内容的“生态”开发。未来的研究应包括对在实践环境中根据该体系结构实现的Web 2.0系统进行评估。

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