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首页> 外文期刊>BMC Medical Informatics and Decision Making >Development and validation of a patient decision aid for prostate Cancer therapy: from paternalistic towards participative shared decision making
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Development and validation of a patient decision aid for prostate Cancer therapy: from paternalistic towards participative shared decision making

机译：前列腺癌患者决策辅助工具的开发和验证：从家长式到参与式共享决策

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Patient decision aids (PDAs) can support the treatment decision making process and empower patients to take a proactive role in their treatment pathway while using a shared decision-making (SDM) approach making participatory medicine possible. The aim of this study was to develop a PDA for prostate cancer that is accurate and user-friendly. We followed a user-centered design process consisting of five rounds of semi-structured interviews and usability surveys with topics such as informational/decisional needs of users and requirements for PDAs. Our user-base consisted of 8 urologists, 4 radiation oncologists, 2 oncology nurses, 8 general practitioners, 19 former prostate cancer patients, 4 usability experts and 11 healthy volunteers. Informational needs for patients centered on three key factors: treatment experience, post-treatment quality of life, and the impact of side effects. Patients and clinicians valued a PDA that presents balanced information on these factors through simple understandable language and visual aids. Usability questionnaires revealed that patients were more satisfied overall with the PDA than clinicians; however, both groups had concerns that the PDA might lengthen consultation times (42 and 41%, respectively). The PDA is accessible on http://beslissamen.nl/ . User-centered design provided valuable insights into PDA requirements but challenges in integrating diverse perspectives as clinicians focus on clinical outcomes while patients also consider quality of life. Nevertheless, it is crucial to involve a broad base of clinical users in order to better understand the decision-making process and to develop a PDA that is accurate, usable, and acceptable.
机译：患者决策辅助器（PDA）可以支持治疗决策过程，使患者能够在其治疗途径中发挥积极作用，同时使用共享决策（SDM）方法使参与性医学成为可能。这项研究的目的是开发一种精确且用户友好的用于前列腺癌的PDA。我们遵循了以用户为中心的设计过程，该过程由五轮半结构化访谈和可用性调查组成，主题涉及诸如用户的信息/决策需求以及PDA的需求。我们的用户群包括8位泌尿科医生，4位放射肿瘤学家，2位肿瘤学护士，8位全科医生，19位前前列腺癌患者，4位可用性专家和11位健康志愿者。患者的信息需求集中在三个关键因素上：治疗经验，治疗后生活质量和副作用的影响。患者和临床医生看重PDA，它通过简单易懂的语言和视觉辅助工具就这些因素提供了平衡的信息。可用性调查表显示，与临床医生相比，患者对PDA的总体满意度更高。但是，两组都担心PDA可能会延长咨询时间（分别为42％和41％）。可通过http://beslissamen.nl/访问PDA。以用户为中心的设计提供了有关PDA需求的宝贵见解，但是由于临床医生关注临床结果而患者也考虑生活质量，因此在整合各种观点时面临挑战。然而，至关重要的是要有广泛的临床用户参与，以便更好地了解决策过程并开发出准确，可用和可接受的PDA。

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