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Decision-making experiences of family members of older adults with moderate dementia towards community and residential care home services: a grounded theory study protocol

机译:患有中度痴呆的老年人的家庭成员对社区和养老院服务的决策经验:扎根的理论研究方案

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Background Caring and supporting older people with dementia have become a major public health priority. Recent reports have also revealed a diminishing number of family carers to provide dementia care in the future. Carers who are engaged in the caring role are known to bear significant psychological, practical and economic challenges as the disease advances over time. Seemingly, evidence indicates that the burden of care can be relieved by formal services. This study aims to explore decision-making experiences of family members of older adults with moderate dementia towards the use of community support (CS) and residential care home (RCH) services. Method A large multi-site constructivist grounded theory in a range of non-government organizations and a private aged home will frame this Hong Kong study. Purposive sampling will begin the recruitment of family members, followed by theoretical sampling. It is estimated that more than 100 family members using CS and RCH services will participate in an interview. The process of successive constant comparative analysis will be undertaken. Discussion The final product, a theory, will generate an integrated and comprehensive conceptual understanding which will explain the processes associated with decision-making of family members for dementia sufferers. Deeper understanding of issues including, but not exclusive to, service needs, expectations and hopes among family carers for improving service support to serve dementia sufferers in CS and RCH services will also be revealed. Importantly, this study seeks to illustrate the practical and strategic aspects of the theory and how it may be useful to transfer its applicability to various service settings to better support those who deliver formal and informal care to the dementia population.
机译:背景技术照顾和支持老年痴呆症已成为公共卫生的主要重点。最近的报告还显示,将来提供痴呆症护理的家庭护理人员数量将减少。随着疾病的发展,从事护理工作的护理人员将面临重大的心理,实践和经济挑战。似乎有证据表明,正规服务可以减轻护理的负担。这项研究旨在探讨患有中度痴呆的老年人的家庭成员在使用社区支持(CS)和养老院(RCH)服务方面的决策经验。方法本研究由一系列非政府组织和私人养老院组成的大型多场所建构主义扎根理论为框架。目的抽样将开始招募家庭成员,然后进行理论抽样。据估计,将有100多个使用CS和RCH服务的家庭成员参加采访。将进行连续不断的比较分析过程。讨论最终产品,一种理论,将产生一个综合而全面的概念性理解,它将解释与痴呆症患者家庭成员决策相关的过程。还将揭示出对问题的更深入理解,包括但不仅限于服务需求,家庭护理人员的期望和希望,以改善为CS和RCH服务中的痴呆症患者提供服务的支持。重要的是,本研究试图说明该理论的实践和战略方面,以及如何将其适用性转移至各种服务环境,以更好地支持为痴呆症人群提供正式和非正式护理的人们。

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