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首页> 外文期刊>BMC International Health and Human Rights >“Research participants want to feel they are better off than they were before research was introduced to them”: engaging cameroonian rural plantation populations in HIV research
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“Research participants want to feel they are better off than they were before research was introduced to them”: engaging cameroonian rural plantation populations in HIV research

机译：“研究参与者希望感觉自己比开始进行研究之前要好得多”：让喀麦隆农村人工林种群参与艾滋病研究

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Background During a period of evolving international consensus on how to engage communities in research, facilitators and barriers to participation in HIV prevention research were explored in a rural plantation community in the coastal region of Cameroon. Methods A formative rapid assessment using structured observations, focus group discussions (FGD), and key informant interviews (KIIs) was conducted with a purposive non-probabilistic sample of plantation workers and their household members. Eligibility criteria included living or working >1?year within the plantation community and age >18?years. Both rapid and in-depth techniques were used to complete thematic analysis. Results Sixty-five persons participated in the study (6 FGDs and 12 KIIs). Participants viewed malaria and gastrointestinal conditions as more common health concerns than HIV. They identified three factors as contributing to HIV risk: concurrent sexual relationships, sex work, and infrequent condom use. Interviewees perceived that the community would participate in HIV research if it is designed to: (1) improve community welfare, (2) provide comprehensive health services and treatment for illnesses, (3) protect the personal information of participants, especially those who test positive for HIV, (4) provide participant incentives, (5) incorporate community input, and (6) minimize disruptions to “everyday life”. Barriers to participation included: (1) fear of HIV testing, (2) mistrust of researchers given possible disrespect or intolerance of plantation community life and lack of concern for communication, (3) time commitment demands, (3) medical care and treatment that would be difficult or costly to access, and (4) life disruptions along with potential requirements for changes in behaviour (i.e., engage in or abstain from alcohol use and sex activities). Conclusions Consistent with UNAIDS guidelines for good participatory practice in HIV prevention research, study participants placed a high premium on researchers’ politeness, trust, respect, communication, tolerance and empathy towards their community. Plantation community members viewed provision of comprehensive health services as an important community benefit likely to enhance HIV research participation.
机译：背景技术在关于如何使社区参与研究的国际共识不断演变的时期，在喀麦隆沿海地区的一个农村人工林社区中探索了促进艾滋病预防研究的障碍和障碍。方法采用结构化观察，焦点小组讨论（FGD）和关键知情人访谈（KII）对形成性快速评估进行了评估，目的是对种植工人及其家庭成员进行有针对性的非概率抽样。资格标准包括在种植园社区中生活或工作超过1年的年龄和18岁以上的年龄。快速和深入的技术都用于完成主题分析。结果有65人参加了研究（6个FGD和12个KII）。与会者认为，与艾滋病毒相比，疟疾和胃肠道疾病是更常见的健康问题。他们确定了导致HIV风险的三个因素：并存的性关系，性工作和不经常使用安全套。受访者认为，如果社区旨在：（1）改善社区福利，（2）提供全面的健康服务和疾病治疗，（3）保护参与者的个人信息，尤其是那些测试呈阳性的人的个人信息，他们将参与艾滋病研究。 （4）提供参与者激励措施，（5）吸收社区意见，（6）尽量减少对“日常生活”的破坏。参与的障碍包括：（1）害怕进行艾滋病毒检测;（2）研究人员的不信任，因为他们可能不尊重或不容忍种植园社区的生活，并且缺乏沟通的关注;（3）时间承诺的要求;（3）医疗保健和治疗（4）生活中断以及行为改变的潜在要求（即从事或戒酒和进行性活动）。结论与联合国艾滋病规划署关于艾滋病毒预防研究的良好参与性实践指南相一致，研究参与者高度重视研究人员的礼貌，信任，尊重，沟通，宽容和对社区的同情。种植园社区成员认为，提供全面的卫生服务是一项重要的社区利益，可能会促进艾滋病毒研究的参与。

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