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Parental experiences and preferences as participants in pediatric research conducted in the emergency department

机译:在急诊科进行儿科研究的父母的经历和偏好

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ObjectiveTo determine parental experiences and preferences regarding the conduct of pediatric research in an emergency department (ED) setting.MethodsWe conducted a cross-sectional study of parents of children ages 0 – 14 years who visited the ED of a tertiary care children’s hospital. Parents completed a Web-based survey designed to assess perceptions regarding: 1) background/training of research personnel, 2) location and timing of research discussions, and 3) factors influencing their consent/refusal decision.ResultsParents totalling 339 were approached, and 227 (67%) surveys were completed. Overall, 87% (197/227; 95% confidence interval [CI] 83, 92) reported they would be comfortable being approached by a university student to discuss research. This proportion did not change when stratified by the child’s gender, illness severity, or season of visit. Whereas only 37% (84/227; 95% CI 31, 43) of respondents would be comfortable being approached in the waiting room, 68% (154/227; 95% CI 62, 75) would be comfortable if approached in a separate area of the main waiting room. The majority reported comfort with follow-up via email (83%; 188/227; 95% CI 78, 88) or telephone (80%; 182/227; 95% CI 75, 85); only 51% (116/227; 95% CI 44, 57) would be comfortable with a scheduled follow-up visit in the hospital. Participants identified potential complications or side effects as the most common reason for declining consent (69%; 157/227; 95% CI 63, 75).ConclusionsThe majority of parents are comfortable being approached by trained university students, preferably in a separate area of an ED waiting room, and email and telephone follow-ups are preferred over a scheduled re-visit.
机译:目的确定在急诊科(ED)中进行儿科研究的父母的经验和偏好。方法我们对访问三级儿童医院急诊室的0-14岁儿童的父母进行了横断面研究。家长完成了一项基于网络的调查,旨在评估以下方面的看法:1)研究人员的背景/培训,2)研究讨论的地点和时间安排,3)影响他们同意/拒绝决定的因素。结果与339名父母进行了接洽,其中有227名父母(67%)调查已完成。总体而言,有87%(197/227; 95%置信区间[CI] 83,92)报告说,他们愿意接受大学生讨论研究的建议。按孩子的性别,疾病严重程度或就诊季节分层后,该比例没有变化。而只有37%(84/227; 95%CI 31,43)的受访者会觉得在候诊室里会感到舒服,而68%(154/227; 95%CI 62,75)如果是分开的话会觉得很舒服。主等候室的区域。大多数人通过电子邮件(83%; 188/227; 95%CI 78、88)或电话(80%; 182/227; 95%CI 75、85)报告了随访的舒适度;只有51%(116/227; 95%CI 44,57)可以安排在医院进行定期随访。参与者发现潜在的并发症或副作用是拒绝同意的最常见原因(69%; 157/227; 95%CI 63,75)。结论大多数受过训练的大学生都愿意与父母联系,最好是在单独的地方。急诊室,以及电子邮件和电话跟进服务,而不是预定的再次访问。

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