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首页> 外文期刊>Ceylon Medical Journal >The development and validation of an instrument to assess caregiver burden in cerebral palsy: Caregiver Difficulties Scale
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The development and validation of an instrument to assess caregiver burden in cerebral palsy: Caregiver Difficulties Scale

机译：评估和评估脑瘫护理人员负担的工具：护理人员困难量表

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Objectives To develop a valid and reliable instrument to assess caregiver burden in caregivers of children with cerebral palsy (CP). Methods A self-administered, multidimensional instrument – Caregiver Difficulties Scale (CDS) – was developed using a combined qualitative-quantitative approach. Items for the preliminary draft were selected from existing caregiver assessment instruments by consensus of experts or key informant interviews with caregivers and service providers of children with CP. Standard item reduction techniques based on responses of 50 caregivers were used to develop the 25 item final draft of CDS. Multidimensionality of CDS was established by exploratory factor analysis, using responses of 125 caregivers. Construct validity of CDS was confirmed by assessing correlations between CDS score and two other constructs: ‘Caregiver quality of life’ and ‘Severity of disease in the care recipient’ in a sample of 90 caregivers. Internal consistency and reliability of CDS were assessed using Cronbach’s alpha and testretest reliability. Results A new instrument (CDS) was developed with four subscales measuring caregiver’s concerns for child, impact on self, support for caregiving and social and economic strain. Face validity, content validity and consensual validity of CDS was established through the process of item generation. Caregiver quality of life and severity of disease in care recipient demonstrated significant moderate to high correlations (r ≥ 0.3) with scores of CDS, confirming construct validity. Both internal consistency and reliability of CDS were satisfactory. Conclusions CDS is a valid and reliable instrument to assess caregiver burden among caregivers of children with cerebral palsy in Sri Lanka. DOI: http://dx.doi.org/10.4038/cmj.v58i4.5617 Ceylon Medical Journal 2013; 58: 162-167
机译：目的开发一种有效和可靠的工具来评估脑瘫（CP）儿童的照料者负担。方法采用定性-定量结合的方法，开发了一种自我管理的多维仪器-照顾者困难量表（CDS）。通过专家的共识或对患有CP的儿童的照料者和服务提供者的关键知情人访谈，从现有的照料者评估工具中选择了初稿的项目。使用基于50位照顾者反应的标准减少项目技术来开发25个CDS最终草案。通过探索性因素分析，使用125位护理人员的回答，建立了CDS的多维性。通过评估CDS评分与其他两种结构之间的相关性，确定了CDS的有效性：90名护理人员的样本中，“护理人员的生活质量”和“被护理者的疾病严重程度”。使用Cronbach的alpha和testretest可靠性评估CDS的内部一致性和可靠性。结果开发了一种新的工具（CDS），该工具具有四个分量表，用于测量看护者对孩子的关注，对自己的影响，对看护的支持以及社会和经济压力。通过项目生成过程建立了CDS的面部有效性，内容有效性和共识有效性。护理接受者的护理人员生活质量和疾病严重程度与CDS评分之间显示出显着的中度至高度相关性（r≥0.3），证实了构建体的有效性。 CDS的内部一致性和可靠性均令人满意。结论CDS是评估斯里兰卡脑瘫患儿看护者负担的有效且可靠的工具。 DOI：http：//dx.doi.org/10.4038/cmj.v58i4.5617锡兰医学杂志2013; 58：162-167

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