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Causes of Death Among 379 Patients With Hemophilia: A Developing Country’s Report

机译:发展中国家的报告称,在379名血友病患者中死亡的原因

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There are steps to achieve an optimum life for patients with hemophilia in developing countries, and awareness of the pattern of death in patients with hemophilia is a prerequisite for any health-care program. Owing to the lack of any data on the pattern of death in patients with hemophilia from developing countries, the current study was done to address common causes of death, and the spectrum of causes of death among individuals with hemophilia A and B. To address the pattern of death in northeast of Iran, we retrospectively collected demographic data regarding deceased patients with hemophilia A and B. Overall, among 379 people with hemophilia A and B, there were 46 deaths. Thirty-two deaths happened in the severe forms of the diseases. The obtained results show the patterns of death in the patients studied are not as parallel as some reports from the developed countries. Traumatic and spontaneous bleeding events were the main causes of death. The trend of death shows a decrease in the current decade post better therapeutic facilities. Evaluation of causes of death in hemophilia can be a useful indicator for managing the efficacy of health care in the current patients.
机译:在发展中国家,有步骤实现血友病患者的最佳生活,而对血友病患者的死亡方式的了解是任何医疗保健计划的先决条件。由于缺乏有关发展中国家血友病患者死亡方式的数据,因此,本研究旨在解决常见的死因,以及A和B型血友病患者的死因范围。在伊朗东北部的死亡模式中,我们回顾性收集了有关死于甲型和乙型血友病患者的人口统计数据。总体而言,在379名甲型和乙型血友病患者中,有46例死亡。这些疾病的严重形式造成32例死亡。获得的结果表明,所研究患者的死亡方式与发达国家的一些报道不一样。创伤性和自发性出血事件是死亡的主要原因。死亡趋势显示,经过十年的改善,治疗设施得到了改善。血友病死亡原因的评估可能是管理当前患者医疗保健有效性的有用指标。

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