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Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample

机译：阿尔茨海默氏病诊断的披露：巴西样本中护理人员的意见

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BACKGROUND: Disclosure of the diagnosis of Alzheimer's disease (AD) remains a contentious issue, and has been little studied in developing countries. OBJECTIVE: To investigate the influence of socio-demographic factors and the experience of being a caregiver on opinion about disclosing AD diagnosis to the patient in a Brazilian sample. METHOD: Caregivers of 50 AD patients together with 50 control participants that did not have the experience of being a caregiver of AD patient were interviewed using a structured questionnaire. RESULTS: Most of the participants (73.0%) endorsed disclosure of the diagnosis, while caregivers were less prone to disclose (58.0%) than controls (88.0%; p=0.0007). Logistic regression confirmed that only the experience of being a caregiver was associated with a lesser tendency for disclosure endorsement. CONCLUSION: The majority of participants was in favor of disclosing the diagnosis, but caregivers were less willing to disclose the diagnosis to the AD patient.
机译：背景：阿尔茨海默氏病（AD）的诊断披露仍然是一个有争议的问题，在发展中国家很少进行研究。目的：调查社会人口统计学因素的影响以及护理人员的经历对巴西样本中向患者披露AD诊断的意见。方法：使用结构化问卷对50名AD患者的照护者和50名没有作为AD患者照料者的对照参与者进行访谈。结果：大多数参与者（73.0％）支持披露诊断信息，而护理人员（88.0％; p = 0.0007）不易披露信息（58.0％）。 Logistic回归证实，只有成为看护者的经历与披露认可的倾向较小相关。结论：大多数参与者赞成公开诊断，但护理人员不太愿意向AD患者透露诊断。

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