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Designing the Health-related Internet of Things: Ethical Principles and Guidelines

机译：设计与健康相关的物联网：道德原则和准则

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The conjunction of wireless computing, ubiquitous Internet access, and the miniaturisation of sensors have opened the door for technological applications that can monitor health and well-being outside of formal healthcare systems. The health-related Internet of Things (H-IoT) increasingly plays a key role in health management by providing real-time tele-monitoring of patients, testing of treatments, actuation of medical devices, and fitness and well-being monitoring. Given its numerous applications and proposed benefits, adoption by medical and social care institutions and consumers may be rapid. However, a host of ethical concerns are also raised that must be addressed. The inherent sensitivity of health-related data being generated and latent risks of Internet-enabled devices pose serious challenges. Users, already in a vulnerable position as patients, face a seemingly impossible task to retain control over their data due to the scale, scope and complexity of systems that create, aggregate, and analyse personal health data. In response, the H-IoT must be designed to be technologically robust and scientifically reliable, while also remaining ethically responsible, trustworthy, and respectful of user rights and interests. To assist developers of the H-IoT, this paper describes nine principles and nine guidelines for ethical design of H-IoT devices and data protocols.
机译：无线计算，无处不在的Internet访问以及传感器的小型化的结合为技术应用打开了大门，这些技术应用可以监控正式医疗系统之外的健康状况。与健康有关的物联网（H-IoT）通过提供对患者的实时远程监视，治疗测试，医疗设备启动以及健身和健康监视，在健康管理中起着越来越重要的作用。考虑到它的众多应用和建议的好处，医疗和社会护理机构以及消费者可能会很快采用它。但是，也提出了必须解决的许多道德问题。生成与健康相关的数据的固有敏感性以及启用Internet的设备的潜在风险带来了严峻的挑战。由于创建，汇总和分析个人健康数据的系统的规模，范围和复杂性，用户已经处于患者的弱势地位，他们似乎要保持对其数据的控制似乎是不可能完成的任务。作为响应，H-IoT必须设计成技术上可靠且科学可靠，同时还要保持符合道德规范，可信赖并尊重用户权益。为了帮助H-IoT开发人员，本文描述了H-IoT设备和数据协议的道德设计的九个原则和九个准则。

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