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Development of the Jackson Heart Study Coordinating Center

机译：杰克逊心脏研究协调中心的发展

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The public health burden caused by cardiovascular disease (CVD) continues to adversely affect individuals in terms of cost, life expectancy, medical, pharmaceutical and hospital care. This burden has been excessive in the case of African Americans. The objective of this paper is to chronicle the procedures and processes that were implemented in the development of the Jackson Heart Study Coordinating Center. The Jackson Heart Study (JHS) is a population-based investigation of traditional and emerging risk factors that predict progression to CVD among African Americans. In response to the struggle against CVD, the Jackson Heart Study has convened a professional, technical, and administrative staff with specific competence in the operation of a coordinating center to handle the wide variety of areas related to CVD studies. The Jackson Heart Study Coordinating Center (JHSCC) was created to assure validity of the JHS findings and provide the resources necessary to meet comprehensive statistical needs (planning, implementing and monitoring data analysis); data management (designing, implementing and managing data collection and quality control), and administrative support. The JHSCC began with a commitment to support study functions in order to increase participant recruitment, retention and safety, meet regulatory requirements, prepare progress reports, and facilitate effective communication with the community and between all JHS centers. The JHSCC facilitates the efforts of the JHS scientists through the development and implementation of the study protocol. The efforts of the JHSCC have resulted in the successful preparation of scientific reports and manuscripts for publication and presentation of study findings and results. In summary, the JHSCC has emerged as an effective research mechanism that serves as the driving force behind the Jackson Heart Study activities.
机译：由心血管疾病（CVD）引起的公共健康负担继续在成本，预期寿命，医疗，药物和医院护理方面对个人产生不利影响。对于非裔美国人来说，这种负担已经过大。本文的目的是记录在杰克逊心脏研究协调中心的发展过程中执行的程序和过程。杰克逊心脏研究（JHS）是一项针对传统和新兴风险因素的人群调查，这些因素预测了非洲裔美国人中CVD的进展。为了应对CVD的斗争，杰克逊心脏研究中心召集了具有特定能力的专业，技术和行政人员来协调中心的运作，以处理与CVD研究相关的广泛领域。杰克逊心脏研究协调中心（JHSCC）的成立是为了确保JHS研究结果的有效性，并提供满足综合统计需求（计划，实施和监测数据分析）所需的资源;数据管理（设计，实施和管理数据收集和质量控制）以及管理支持。 JHSCC首先承诺支持研究功能，以增加参与者的招募，保留和安全性，满足法规要求，准备进度报告，并促进与社区以及所有JHS中心之间的有效沟通。 JHSCC通过制定和实施研究方案来促进JHS科学家的努力。 JHSCC的努力已成功编写了科学报告和手稿，以发表和介绍研究结果和结果。综上所述，JHSCC已经成为一种有效的研究机制，成为了杰克逊心脏研究活动背后的推动力。

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