Is the NIH policy for sharing GWAS data running the risk of being counterproductive?

Michael Krawczak; Jürgen W Goebel; David N Cooper

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Is the NIH policy for sharing GWAS data running the risk of being counterproductive?

机译：用于共享GWAS数据的NIH政策是否存在适得其反的风险？

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摘要

Through their current policy on data sharing, the National Institutes of Health (NIH) are inadvertently placing a serious and potentially insuperable burden upon non-US researchers who perform patient-based genomics studies in collaboration with US institutions. Because this policy could adversely affect future transnational scientific collaborations, we explore some of its likely consequences and suggest possible courses of remedial action wherever feasible.

机译：美国国家卫生研究院（NIH）通过其当前的数据共享政策，无意中给与美国机构合作进行基于患者的基因组学研究的非美国研究人员带来了严重且可能无法克服的负担。由于该政策可能会对未来的跨国科学合作产生不利影响，因此我们探讨了其可能产生的后果，并在可行的情况下建议了可能的补救措施。

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《Investigative Genetics》 |2010年第1期|共页
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Michael Krawczak; Jürgen W Goebel; David N Cooper;
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中图分类遗传学;
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2. Data use under the NIH GWAS data sharing policy and future directions. [J] . Dina N Paltoo, Laura Lyman Rodriguez, Michael Feolo, Nature Genetics . 2014,第9期

机译：在NIH GWAS数据共享策略和未来方向下的数据使用。
3. NIH data and resource sharing, data release and intellectual property policies for genomics community resource projects [J] . Claire T Driscoll Expert Opinion on Therapeutic Patents . 2005,第1期

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4. Privacy Preserving GWAS Data Sharing [C] . Fienberg Stephen E., Slavkovic Aleksandra, Uhler Caroline 11th IEEE International Conference on Data Mining Workshops . 2011

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6. Is the NIH policy for sharing GWAS data running the risk of being counterproductive? [O] . Michael Krawczak, Jürgen W Goebel, David N Cooper 2010

机译：用于共享GWAS数据的NIH政策是否存在适得其反的风险？
7. Is the NIH policy for sharing GWAS data running the risk of being counterproductive? [O] . Michael Krawczak, Jürgen W Goebel, David N Cooper 2010

机译：用于共享GWAS数据的NIH政策是否存在适得其反的风险？

Is the NIH policy for sharing GWAS data running the risk of being counterproductive?

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