• 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>International Journal of Psychological and Brain Sciences >Child with Retinoblatoma: Diagnosis Announcement, Difficulties and Parent's Experiences
【24h】

Child with Retinoblatoma: Diagnosis Announcement, Difficulties and Parent's Experiences

机译：儿童视网膜母细胞瘤：诊断公告，困难和父母的经验

获取原文
           
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

Introduction: Retinoblastoma is a cancerous tumor of the retina. It is a rare pathology that affects each year, in France, one child out of 15,000 to 20,000 births. In Morocco, and in a prospective study conducted over 2 years and 3 months in the pediatric ophthalmology department in Casablanca, the annual incidence of retinoblastoma was estimated at 18 cases per year. The diagnosis of cancer, like any other serious illness, provokes an intense feeling of guilt in the child and in his parents. The retinoblastoma diagnosis announcement remains a difficult and delicate moment for caregivers and parents. The purpose of our work is to describe the experience of the parents of a child with retinoblastoma and to assess the degree of satisfaction of these children both for the treatment of their child and for clarity. information transmitted. Material and method: We conducted a descriptive cross-sectional study of the parents of children with retinoblastoma who received care in the ophthalmology department of Mohammed VI CHU Marrakech Morocco, and this over a period of one year from March 2016 to March 2017. The data is collected from parents with a questionnaire aimed to assess the parents' feelings and experiences around the following areas: the announcement structure, the climate of trust, proposal of formalizing personalized support. Results: The average age of children at the time of diagnosis is 11 months, with a male predominance, sex ratio is 1.4. All families had one sick child. Retinoblastoma was bilateral in two cases. The surgical treatment was radical in all cases. 75% felt that the doctor was able to find the right words to announce the disease, and 42% felt he found the right words. At the time of diagnosis, 11 out of 12 families felt that they had received sufficient listening from the healthcare professionals and 75% felt that listening was quite sufficient. All parents report that the doctor who made the announcement spoke to them with care and respect and 92% spoke on the extreme positive score. 66% of families report receiving a personalized care plan. Conclusion: The results of this study will improve the overall care provided to children and integrate the difficulties expressed and felt by parents to the care project.
机译：简介：视网膜母细胞瘤是视网膜癌。这是一种罕见的病理学，每年都会影响到法国的15,000至20,000胎中的一个孩子。在摩洛哥，并在卡萨布兰卡的儿科眼科进行了为期2年零3个月的前瞻性研究，估计每年视网膜母细胞瘤的发病率为18例。与其他严重疾病一样，癌症的诊断在孩子及其父母中引起强烈的内感。对于护理人员和父母来说，视网膜母细胞瘤的诊断公告仍然是一个艰难而微妙的时刻。我们的工作目的是描述视网膜母细胞瘤儿童父母的经历，并评估这些儿童对孩子的治疗和清晰度的满意度。信息传输。材料和方法：我们对2016年3月至2017年3月的一年时间内在Mohammed VI CHU马拉喀什摩洛哥眼科接受照料的视网膜母细胞瘤儿童父母进行了描述性横断面研究。数据问卷是从父母那里收集的，旨在评估父母在以下方面的感受和经历：公告结构，信任气氛，形式化个性化支持的建议。结果：诊断时儿童的平均年龄为11个月，男性占多数，性别比为1.4。所有家庭都有一个生病的孩子。视网膜母细胞瘤是双侧的两例。在所有情况下，手术治疗都是彻底的。 75％的人认为医生能够找到正确的词来宣布疾病，而42％的人认为他找到了正确的词。在诊断时，有12个家庭中的11个家庭认为他们已经接受了专业医护人员的充分聆听，而75％的家庭认为聆听是足够的。所有父母都报告说，宣布这一消息的医生以谨慎和尊重的态度与他们交谈，其中92％的人给出了极高的积极评分。 66％的家庭报告接受了个性化的护理计划。结论：这项研究的结果将改善向儿童提供的总体照料，并将父母表达和感受到的困难纳入照料计划中。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号