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Clinical Practice Guidelines for the Medical Management of Nonhospitalized Ulcerative Colitis: The Patient Perspective

机译：非住院溃疡性结肠炎医疗管理的临床实践指南：患者的观点

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A series of clinical practice guidelines were recently developed by the Canadian Association of Gastroenterology (CAG) to provide clinicians with recommendations for the medical management of nonhospitalized ulcerative colitis (UC) patients. These guidelines were developed, reviewed and agreed on by expert clinicians and methodologists. Following the finalization of the guidelines, a group of patients with UC as well as several inflammatory bowel disease clinicians, were brought together for a half-day workshop to provide feedback from the patient perspective. At the workshop, the guideline development process was described and the guidelines were reviewed to ensure comprehension. Patients then had the opportunity to provide their insight to the relevance of the guideline development process and the content of the guidelines as it related to their personal experiences with UC. The patient group believed that, although the new guidelines will be a tremendous resource for the health care provider community, a more ‘lay-friendly’ version would better facilitate dialogue between patients and their health care practitioners. The importance of the patient/physician relationship is paramount when making decisions regarding treatment plans, in which patient preferences play a key role in determining the most appropriate therapy and dosing regimen, which, in turn, impact the likelihood of adherence to the treatment plan. It was also believed that quality of life issues were not fully addressed in the guidelines. Much could be learned from shared experiences and coping strategies that would empower patients to take charge of their health and become equal partners with their care providers.
机译：加拿大胃肠病学协会（CAG）最近制定了一系列临床实践指南，旨在为临床医生提供有关非住院溃疡性结肠炎（UC）患者医疗管理的建议。这些准则是由专业的临床医生和方法学家制定，审查并达成共识的。指南最终定稿后，一群UC患者以及几位炎症性肠病临床医生汇聚在一起参加了为期半天的研讨会，以从患者的角度提供反馈。在研讨会上，对指南制定过​​程进行了描述，并对指南进行了审查，以确保理解。然后，患者有机会就准则制定过程的相关性及其与他们在UC的个人经历有关的准则的内容提供见解。患者小组认为，尽管新指南将为医疗保健提供者社区提供大量资源，但更“方便居家”的版本将更好地促进患者与其医疗保健从业者之间的对话。在制定有关治疗计划的决定时，患者/医师关系的重要性至关重要，其中，患者的喜好在确定最合适的治疗和给药方案方面起着关键作用，进而影响遵守治疗计划的可能性。人们还认为，准则并未充分解决生活质量问题。可以从共享的经验和应对策略中学到很多东西，这些经验和应对策略将使患者能够掌控自己的健康，并与他们的护理提供者成为平等的伙伴。

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