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首页> 外文期刊>Iranian red crescent medical journal >The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study
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The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study

机译：从社会污名和排斥反应看牛皮癣患者的生活经历：定性研究

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摘要

Psoriasis is a common, chronic skin disease that causes challenges such as stigma and labeling from both the community and individuals due to its effects on appearance. Objectives: The objective of this study was to describe and explain the social stigma and rejection experienced by patients with psoriasis. Patients and Methods: The present research is a qualitative study with a hermeneutic phenomenological approach conducted among psoriasis patients referring to the dermatology clinic and ward of Imam Khomeini hospital in Ahvaz, Iran between June and December 2014. In this study, 15 patients with psoriasis were selected by purposeful sampling, and they were asked to express their experience of stigma and rejection. The data were collected through in-depth semi-structured interviews, and Diekelmann and colleagues’ method was used for data analysis. Results: After analysis of interviews, four themes were extracted: lack of social support, unrealistic and inappropriate labeling, rejection and isolation, and feeling of absurdity and futility. These can be indicative of the patients’ experience from social stigma and rejection phenomena. Conclusions: Patients’ experiences of stigma and rejection phenomena indicated that all aspects of their lives are affected. Moreover, these findings highlight the significance of stigma and rejection concepts in providing better care to these patients.
机译：牛皮癣是一种常见的慢性皮肤病，由于其对外观的影响，会引起社会和个人的污名和标签等挑战。目的：本研究的目的是描述和解释牛皮癣患者的社会耻辱感和排斥反应。患者与方法：本研究是定性研究，采用2014年6月至2014年12月在伊朗阿瓦兹的皮肤科诊所和伊玛目霍梅尼医院病房对银屑病患者进行的解释学现象学方法进行的研究。本研究中，有15名银屑病患者通过有目的的抽样选择，他们被要求表达自己的耻辱和拒绝经历。数据是通过深入的半结构化访谈收集的，Diekelmann及其同事的方法用于数据分析。结果：在对访谈进行分析之后，提取了四个主题：缺乏社会支持，标签不切实际和不适当，拒绝和孤立以及荒唐和徒劳的感觉。这些可以表明患者受到社会污名和排斥现象的经历。结论：患者的污名和排斥现象的经历表明，他们生活的各个方面都受到影响。而且，这些发现突出了污名和排斥概念在为这些患者提供更好的护理中的重要性。

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