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首页> 外文期刊>Global Qualitative Nursing Research >Navigating Without a Roadmap: Challenges of Early Alzheimera??s Caregivers With Their Health Care Team
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Navigating Without a Roadmap: Challenges of Early Alzheimera??s Caregivers With Their Health Care Team

机译：没有路线图导航：阿尔茨海默氏病早期照顾者及其医疗保健团队所面临的挑战

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Caregivers of individuals with Alzheimera??s disease are willing to make large sacrifices to attend to the everyday demands of their loved onea??s health. Many still lack the necessary skills, information, and resources from medical professionals needed to fully execute this role. The aim of this study is to explore the challenges that first-time Alzheimera??s caregivers encountered with members of their health care team around a loved onea??s diagnosis. Four focus groups (N = 13) were conducted in a primary care clinic and academic setting, using a semi-structured interview format facilitated by a mental health professional. The authors used thematic analysis to generate three overarching themes regarding lack of information given about the diagnosis, complications with medication management, and level of confidence in their medical team. Medical professionals should consider educating Alzheimera??s disease caregivers during the initial stage of this role, providing greater continuity of care with the family throughout treatment.
机译：患有阿尔茨海默氏病的人的照顾者愿意做出巨大的牺牲来照顾自己所爱的人的健康。许多人仍然缺乏充分履行这一职责所需的必要医疗技能，信息和资源。这项研究的目的是探讨阿尔茨海默氏病首次护理人员与他们的医护团队成员围绕亲人的诊断所面临的挑战。在基层医疗诊所和学术机构中，使用心理健康专业人员协助的半结构式访谈形式，进行了四个焦点小组（N = 13）的调查。作者使用主题分析生成了三个总体主题，这些主题涉及缺乏诊断信息，药物治疗并发症以及对医疗团队的信心水平。医疗专业人员应考虑在此角色的初始阶段教育阿尔茨海默氏病的护理人员，从而在整个治疗过程中为家人提供更大的护理连续性。

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