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Building a Progressive-Situational Model of Post-Diagnosis Information Seeking for Parents of Individuals With Down Syndrome:

机译:为患有唐氏综合症的人的父母建立诊断信息后的渐进式情境模型:

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This grounded theory study used in-depth, semi-structured interview to examine the information-seeking behaviors of 35 parents of children with Down syndrome. Emergent themes include a progressive pattern of behavior including information overload and avoidance, passive attention, and active information seeking; varying preferences between tacit and explicit information at different stages; and selection of information channels and sources that varied based on personal and situational constraints. Based on the findings, the author proposes a progressive model of health information seeking and a framework for using this model to collect data in practice. The author also discusses the practical and theoretical implications of a responsive, progressive approach to understanding parentsa?? health informationa??seeking behavior.
机译:这项扎根的理论研究使用了深入的,半结构化的访谈,以调查35名唐氏综合症患儿父母的信息寻求行为。新兴的主题包括一种渐进的行为模式,包括信息超载和回避,被动关注和主动寻求信息;在不同的阶段,隐性信息和显性信息之间的偏好有所不同;以及根据个人和情况的限制而变化的信息渠道和来源的选择。基于这些发现,作者提出了一种健康信息搜索的渐进模型,以及在实践中使用该模型收集数据的框架。作者还讨论了一种理解父母的响应式渐进方法的实践和理论意义。健康信息:寻求行为。

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