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a??I Do It With Lovea??: Engagement in Caring for People With Dementia

机译:“我与Lovea一起做”?:致力于照顾痴呆症患者

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For caregivers, the impacts of caring for their loved ones with dementia at home are complex. The purpose of this study was to gain understanding of the meaning and experience of engagement for caregivers of individuals with dementia living in the community. Participants are from a culturally diverse population of low-income caregivers and care recipients in the northeastern United States. We conducted in-depth semi-structured interviews with caregivers (n = 17) who were caring for parents, friends, or other relatives with dementia. We used interpretative phenomenological analysis and identified the superordinate themes of connectedness, meaningfulness, acceptance, and vigilance. We conclude that caregiver engagement is a multidimensional phenomenon, with some dimensions being contextual and specific to caregiving. It is a relational concept, referring to a committed, vigilant, and meaningful relationship of caregivers and care recipients as active collaborators. The different aspects of engagement can complement each other, or they can be in contradiction.
机译:对于看护者而言,在家中照顾亲人患有痴呆症的影响是复杂的。这项研究的目的是了解居住在社区中的痴呆症患者的照顾者的参与意义和经验。参与者来自美国东北部不同文化背景的低收入看护者和接受者群体。我们对照顾父母,朋友或其他患有痴呆症的亲戚的照料者(n = 17)进行了深入的半结构化访谈。我们使用了解释现象学分析,并确定了联系性,意义性,接受性和警惕性等上级主题。我们得出的结论是,照顾者的参与是一个多维现象,其中某些维度是与上下文相关的并且特定于照顾者。这是一个关系概念,是指护理人员和受护理者之间的积极,警惕和有意义的关系是积极的合作者。参与的不同方面可以互补,也可以矛盾。

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